Eva González-Ortega, Alba Aza, Isabel Vicario-Molina, M Begoña Orgaz, María Gómez-Vela, Marta Badia
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What Factors Explain Family Quality of Life in Neurodegenerative Diseases?
Neurodegenerative diseases (NDs) are a major cause of dependency among elderly and affect the entire family unit. However, the literature has paid little attention to Family Quality of Life (FQOL) and focused on the patient and the main caregiver. The aim was to analyze the FQOL of people with NDs from a systemic perspective and to identify associated factors. A sample of 300 family caregivers from the cross-border region of Spain-Portugal completed the FQOLS - ND, which collected FQOL global and domain-level scores in terms of attainment and satisfaction. The highest rates of FQOL were obtained for the domain Family relations and the lowest for Support from services. The level of perceived barriers to social-health services emerged as the strongest predictor of global FQOL in all models. It is essential to reduce the obstacles to access social-health services and provide the family with resources according to their needs, especially in rural areas.
期刊介绍：
With over 30 years of consistent, quality articles devoted to social work practice, theory, administration, and consultation in the field of aging, the Journal of Gerontological Social Work offers you the information you need to stay abreast of the changing and controversial issues of today"s growing aging population. A valuable resource for social work administrators, practitioners, consultants, and supervisors in long-term care facilities, acute treatment and psychiatric hospitals, mental health centers, family service agencies, community and senior citizen centers, and public health and welfare agencies, JGSW provides a respected and stable forum for cutting-edge insights by experts in the field.
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