Assessment of Parental Quality of Life in Febrile Seizures Using Pediatric Quality of Live Inventory Parental Report

IF 0.2 Q4 PEDIATRICS

Journal of Pediatric Epilepsy Pub Date : 2021-08-31 DOI:10.1055/s-0041-1733954

G. Octavius, Cindy Virliani, A. Juliansen

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Abstract

Abstract Febrile seizure (FS) is the most common convulsive disorder in children with FS prevalence in Indonesia reaching 2 to 4% in 2008. Although this entity has a good prognosis, it often brings panic, fear, and anxiety to the parents. This seemingly benign condition might lead to changes in family structures resulting in adverse effects on the family's daily lives and affect their overall quality of life (QoL). This study evaluates the QoL of parents whose children have FS. A cross-sectional study done in 47 parents whose children had a FS between ages 1 and 4 years from January 2020 to May 2020 and who were evaluated at the Siloam General Hospital, Lippo Village. Parents were asked to fill in Pediatric Quality of Life Questionnaire parent proxy. Data normality was analyzed using the Shapiro–Wilk's test and the significant impact of parents' QoL using the chi-square and independent t-tests. From a total of 47 parents, 30 (63.8%) parents had children with simple FS and 17 (36.2%) parents had children with complex FS. Parents whose children were in the age group of 1 year to 1 year 11 months had the best mean score of 79.64 (12.17) compared with other age groups. In the subset of 3 to 4 years old, the daily activities domain was significantly affected (p-value = 0.3). Parents with a lower educational level had a higher mean score of 76.53 (14.42) than parents who had a higher educational level, with a total mean of 79.88 (11.85), particularly with the highest mean score of 100 in the communication domain. The occurrence of FSs in children affected their parents' QoL in almost all domains in the Pediatric Quality of Life Inventory questionnaire.

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应用儿科生活质量问卷父母报告评估热性惊厥患儿的父母生活质量

热性惊厥(FS)是印度尼西亚儿童中最常见的惊厥疾病，2008年患病率达到2%至4%。虽然这种实体预后良好，但它经常给父母带来恐慌、恐惧和焦虑。这种看似良性的情况可能会导致家庭结构的改变，从而对家庭的日常生活产生不利影响，并影响他们的整体生活质量。本研究对FS患儿家长的生活质量进行评估。在2020年1月至2020年5月期间，对47名父母进行了横断面研究，这些父母的孩子在1至4岁之间患有FS，并在力宝村的西罗亚总医院进行了评估。请家长填写《儿童生活质量问卷》。采用夏皮罗-威尔克检验分析数据正态性，采用卡方检验和独立t检验分析父母生活质量的显著性影响。47位家长中，单纯性FS 30位(63.8%)，复合性FS 17位(36.2%)。1岁~ 1岁11个月年龄组家长的平均得分最高，为79.64分(12.17分)。在3 ~ 4岁的子集中，日常活动域受到显著影响(p值= 0.3)。低文化程度家长的平均得分为76.53分(14.42分)，高于高文化程度家长的平均得分79.88分(11.85分)，其中交际领域的平均得分最高，为100分。在儿童生活质量问卷调查中，儿童生活质量失调的发生几乎影响了父母生活质量的所有领域。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Epilepsy PEDIATRICS-

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期刊介绍： The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.