The Financial Challenges of Parents of a Child with Autism in Addis Ababa, Ethiopia: A Qualitative Study

Journal of Social Sciences and Management Studies Pub Date : 2022-01-05 DOI:10.56556/jssms.v1i1.33

Biruk Befkadu, Margaret E. Adamek, Debebe Ero

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引用次数: 1

Abstract

Little is known about the financial challenges of autism. This study looks into the financial challenges faced by parents of a child living with autism in Addis Ababa, Ethiopia. Twelve in-depth interviews and four key informant interviews were held with the professionals in Joy and Nehemiah Autism Centers. The participants were selected via the convenience sampling method. The data were transcribed and analyzed through thematic data analysis. All the participants underlined that caring for a child with autism spectrum disorder (ASD) requires extra cost, attention, and effort. Most of the participants complained about the financial burden in relation to the cost of fulfilling the basic needs (high cost of food and clothing), transportation, and medical expenses. The system has to proactively work to address the financial and other concerns of the parents. The service is limited and unsatisfactory compared to the need. On the service provision, the government should try and address the different unmet needs and challenges of these children and their parents by providing proper attention and financial support

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埃塞俄比亚亚的斯亚贝巴自闭症儿童父母的经济挑战:一项定性研究

人们对自闭症带来的经济挑战知之甚少。这项研究调查了埃塞俄比亚亚的斯亚贝巴患有自闭症儿童的父母所面临的经济挑战。与Joy和Nehemiah自闭症中心的专业人员进行了12次深度访谈和4次关键信息提供者访谈。研究对象采用方便抽样法进行选择。通过专题数据分析对数据进行转录和分析。所有的参与者都强调，照顾一个患有自闭症谱系障碍(ASD)的孩子需要额外的成本、注意力和努力。大多数与会者抱怨在满足基本需求的费用(食品和服装费用高)、交通和医疗费用方面的经济负担。该系统必须积极主动地解决家长的经济和其他问题。与需要相比，服务是有限的，令人不满意。在服务提供方面，政府应尝试通过适当的关注和财政支持，解决这些儿童及其父母的不同需求和挑战

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Journal of Social Sciences and Management Studies Social Sciences and Management Studies-

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期刊介绍： Journal of Social Sciences and Management Studies (ISSN: 2957-8795) is a peer reviewed journal focuses on integrating theory, research and practice in the area of management and social sciences. The journal discusses the distinctive disciplinary practices within the sciences of the management and social field and examines examples of these practices. In order to define and exemplify disciplinarity, the journal fosters dialogue ranging from the broad and speculative to the microcosmic and empirical. In considering the varied interdisciplinary, trans-disciplinary or multidisciplinary work across and between the social, natural and applied sciences, the journal showcases interdisciplinary practices in action. The focus of papers ranges from the finely grained and empirical, to wide-ranging multi-disciplinary and transdisciplinary practices, to perspectives on knowledge and method.