Exploring the Role of Pediatric Neurology in Determinations of Futility, Identifying Vulnerability, and Participating in Shared Decision Making through Case-Based Analysis

IF 0.2 Q4 PEDIATRICS
Julio Quezada, J. Lantos
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引用次数: 0

Abstract

Abstract It is not uncommon for pediatric neurologists to encounter ethical dilemmas in clinical practice. These dilemmas not only require an exploration of the basic bioethical principles, but also considering that neurological disease can have impact on a person's self-identity. Patients with neurological disease are particularly vulnerable and at risk of having long-term sequelae of their nervous system and their individual selves. These important considerations can then raise the question of futility of treatment in a setting of uncertainty of outcome. In these complex situations, a pediatric neurologist plays an important role in shared decision making with both families and multidisciplinary teams. In this paper, we explore case-based scenarios that serve to demonstrate the unique character of ethics in neurology and the role of pediatric neurologists in finding solutions that are in a patient's best interest, have a minimal chance of harm, respect a patient's autonomy, and are just and promote justice.
通过案例分析,探索儿童神经病学在确定无效、识别脆弱性和参与共同决策中的作用
摘要小儿神经科医师在临床实践中遇到伦理困境并不罕见。这些困境不仅需要探索基本的生物伦理原则,还需要考虑到神经系统疾病可能对一个人的自我认同产生影响。患有神经系统疾病的患者尤其容易受到伤害,他们的神经系统和个人自我都有长期后遗症的风险。这些重要的考虑可能会在结果不确定的情况下提出治疗无效的问题。在这些复杂的情况下,儿科神经科医生在与家庭和多学科团队共同决策方面发挥着重要作用。在本文中,我们探讨了基于案例的场景,以展示神经病学伦理的独特特征,以及儿科神经学家在寻找符合患者最佳利益的解决方案方面的作用,伤害的可能性最小,尊重患者的自主权,公正和促进正义。
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来源期刊
自引率
0.00%
发文量
21
期刊介绍: The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.
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