Multiple sclerosis care in Pakistan; analysis of data presented at first PAKTRIMS conference 

Zara C. Shah, Haris Majid, Sadia Nishat, Sumera Riffat, S. Shafee, Ahmed A Wali, N. Shahbaz, M. Sheerani, M. Wasay
{"title":"Multiple sclerosis care in Pakistan; analysis of data presented at first PAKTRIMS conference ","authors":"Zara C. Shah, Haris Majid, Sadia Nishat, Sumera Riffat, S. Shafee, Ahmed A Wali, N. Shahbaz, M. Sheerani, M. Wasay","doi":"10.56310/pjns.v17i01.172","DOIUrl":null,"url":null,"abstract":"Novel data on Multiple Sclerosis (MS) in Pakistan from leading institutes in the country was presented at the first Pakistan Treatment in Multiple Sclerosis (PAKTRIMS) Conference, organized by the section of neurology, department of medicine, Aga Khan University, Karachi on Saturday, December 18, 2021. Pakistan has been considered to have a low prevalence of MS; however, recent research reveals that it is not as uncommon as previously believed to be in the country. The true prevalence and incidence of MS in the country is unknown because of dearth of research. Data of MS patients enrolled in various private and public institutes in Pakistan highlights the current treatment offered in Pakistan for MS patients with steroids as the mainstay treatment and disease modifying drugs (DMD) mainly including azathioprine, ocrelizumab and rituximab. Available data featuring disease progression indicates a successful response to the treatment offered to patients with improved expanded disability status scale (EDSS) and radiological findings. The conference was a steppingstone towards future research in MS in Pakistan as it highlighted what is furthered required to have a better picture of the disease in the country. Available data majorly outlines demographic characteristics and disease characteristics, however, there is a need for research to fill in the gap for data in reporting MS diagnosis, treatment, and disease outcome to develop a better healthcare system geared towards MS patients in a low- and middle-income Country (LMIC)","PeriodicalId":19818,"journal":{"name":"Pakistan Journal of Neurological Sciences","volume":"1 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2022-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Pakistan Journal of Neurological Sciences","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.56310/pjns.v17i01.172","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 2

Abstract

Novel data on Multiple Sclerosis (MS) in Pakistan from leading institutes in the country was presented at the first Pakistan Treatment in Multiple Sclerosis (PAKTRIMS) Conference, organized by the section of neurology, department of medicine, Aga Khan University, Karachi on Saturday, December 18, 2021. Pakistan has been considered to have a low prevalence of MS; however, recent research reveals that it is not as uncommon as previously believed to be in the country. The true prevalence and incidence of MS in the country is unknown because of dearth of research. Data of MS patients enrolled in various private and public institutes in Pakistan highlights the current treatment offered in Pakistan for MS patients with steroids as the mainstay treatment and disease modifying drugs (DMD) mainly including azathioprine, ocrelizumab and rituximab. Available data featuring disease progression indicates a successful response to the treatment offered to patients with improved expanded disability status scale (EDSS) and radiological findings. The conference was a steppingstone towards future research in MS in Pakistan as it highlighted what is furthered required to have a better picture of the disease in the country. Available data majorly outlines demographic characteristics and disease characteristics, however, there is a need for research to fill in the gap for data in reporting MS diagnosis, treatment, and disease outcome to develop a better healthcare system geared towards MS patients in a low- and middle-income Country (LMIC)
巴基斯坦多发性硬化症的治疗;在第一次PAKTRIMS会议上提出的数据分析
2021年12月18日(星期六),卡拉奇阿加汗大学医学系神经病学分会在首届巴基斯坦多发性硬化症治疗(PAKTRIMS)会议上公布了来自巴基斯坦主要研究所的有关多发性硬化症(MS)的新数据。巴基斯坦一直被认为多发性硬化症患病率较低;然而,最近的研究表明,它并不像以前认为的那样罕见。由于缺乏研究,MS在该国的真实患病率和发病率尚不清楚。在巴基斯坦各私立和公立机构登记的多发性硬化症患者的数据强调,巴基斯坦目前为多发性硬化症患者提供的治疗以类固醇为主要治疗手段和疾病修饰药物(DMD),主要包括硫唑嘌呤、ocrelizumab和利妥昔单抗。现有的疾病进展数据表明,对扩展残疾状态量表(EDSS)和放射学表现改善的患者提供的治疗有成功的反应。这次会议是巴基斯坦未来MS研究的垫脚石,因为它强调了在该国更好地了解该疾病所需要的进一步工作。现有数据主要概述了人口统计学特征和疾病特征,然而,有必要研究以填补报告MS诊断,治疗和疾病结果的数据空白,以开发面向中低收入国家(LMIC) MS患者的更好的医疗保健系统。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信