Maintaining High-Touch in High-Tech Digital Health Monitoring and Multi-Omics Prognostication: Ethical, Equity, and Societal Considerations in Precision Health for Palliative Care.

IF 4.6 Q2 MATERIALS SCIENCE, BIOMATERIALS
John Noel Viana, Caitlin Pilbeam, Mark Howard, Brett Scholz, Zongyuan Ge, Carys Fisser, Imogen Mitchell, Sujatha Raman, Joan Leach
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引用次数: 0

Abstract

Advances in digital health, systems biology, environmental monitoring, and artificial intelligence (AI) continue to revolutionize health care, ushering a precision health future. More than disease treatment and prevention, precision health aims at maintaining good health throughout the lifespan. However, how can precision health impact care for people with a terminal or life-limiting condition? We examine here the ethical, equity, and societal/relational implications of two precision health modalities, (1) integrated systems biology/multi-omics analysis for disease prognostication and (2) digital health technologies for health status monitoring and communication. We focus on three main ethical and societal considerations: benefits and risks associated with integration of these modalities into the palliative care system; inclusion of underrepresented and marginalized groups in technology development and deployment; and the impact of high-tech modalities on palliative care's highly personalized and "high-touch" practice. We conclude with 10 recommendations for ensuring that precision health technologies, such as multi-omics prognostication and digital health monitoring, for palliative care are developed, tested, and implemented ethically, inclusively, and equitably.

在高科技数字健康监测和多种疾病预测中保持高度接触:姑息治疗精准健康的伦理、公平和社会考虑。
数字健康、系统生物学、环境监测和人工智能(AI)的进步继续给医疗保健带来革命性的变化,开创了精准健康的未来。精准健康不仅仅是疾病治疗和预防,其目的是在整个生命周期内保持良好的健康。然而,精准健康如何影响临终或生命受限患者的护理?我们在这里研究了两种精确健康模式的伦理、公平和社会/关系影响,(1)用于疾病预测的集成系统生物学/多组学分析和(2)用于健康状态监测和沟通的数字健康技术。我们关注三个主要的伦理和社会考虑因素:将这些模式纳入姑息治疗系统的好处和风险;将代表性不足和边缘化群体纳入技术开发和部署;以及高科技模式对姑息治疗高度个性化和“高度接触”实践的影响。最后,我们提出了10条建议,以确保姑息治疗的精确健康技术,如多组学预测和数字健康监测,得到合乎道德、包容和公平的开发、测试和实施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
ACS Applied Bio Materials
ACS Applied Bio Materials Chemistry-Chemistry (all)
CiteScore
9.40
自引率
2.10%
发文量
464
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