Family carers’ expectations regarding dementia care services and support in China: A qualitative study

IF 2.4 3区社会学 Q2 GERONTOLOGY

Dementia-International Journal of Social Research and Practice Pub Date : 2022-06-14 DOI:10.1177/14713012221106817

Wenhong Zhao, M. Wu, H. Petsky, W. Moyle

{"title":"Family carers’ expectations regarding dementia care services and support in China: A qualitative study","authors":"Wenhong Zhao, M. Wu, H. Petsky, W. Moyle","doi":"10.1177/14713012221106817","DOIUrl":null,"url":null,"abstract":"Introduction In China, approximately 85% of people with dementia are cared for by family carers. However, limited research has been conducted to examine family carers’ expectations regarding what they perceive is required for optimal care. Therefore, this study aimed to explore family carers’ expectations regarding dementia care support and services in China. Methods A qualitative study employing semi-structured interviews, with data collected from three public tertiary hospitals where the primary family carers of people with dementia (N = 21) were recruited from May to December 2019. Purposive maximum variation sampling was used to recruit participants. Data was interpreted both inductively and deductively using thematic analysis. Findings Four themes were identified. The family carers reported minimal support regarding dementia care, and they held little hope of receiving support. However, most carers expressed their limited expectations, such as financial support from the government and respite care services from the community. Carers believed that care was their duty, and some of them were unwilling to move their relative with dementia into a nursing home. Conclusion Health and the three-tier long-term care systems in China are inadequately prepared for the challenges of dementia care, suggesting the need to develop health and social services and improve support for family carers to enable improved care for people with dementia.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":null,"pages":null},"PeriodicalIF":2.4000,"publicationDate":"2022-06-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Dementia-International Journal of Social Research and Practice","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1177/14713012221106817","RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"GERONTOLOGY","Score":null,"Total":0}

引用次数: 2

Abstract

Introduction In China, approximately 85% of people with dementia are cared for by family carers. However, limited research has been conducted to examine family carers’ expectations regarding what they perceive is required for optimal care. Therefore, this study aimed to explore family carers’ expectations regarding dementia care support and services in China. Methods A qualitative study employing semi-structured interviews, with data collected from three public tertiary hospitals where the primary family carers of people with dementia (N = 21) were recruited from May to December 2019. Purposive maximum variation sampling was used to recruit participants. Data was interpreted both inductively and deductively using thematic analysis. Findings Four themes were identified. The family carers reported minimal support regarding dementia care, and they held little hope of receiving support. However, most carers expressed their limited expectations, such as financial support from the government and respite care services from the community. Carers believed that care was their duty, and some of them were unwilling to move their relative with dementia into a nursing home. Conclusion Health and the three-tier long-term care systems in China are inadequately prepared for the challenges of dementia care, suggesting the need to develop health and social services and improve support for family carers to enable improved care for people with dementia.

查看原文本刊更多论文

中国家庭护理人员对痴呆症护理服务和支持的期望：一项定性研究

引言在中国，大约85%的痴呆症患者由家庭护理人员照顾。然而，对家庭护理人员对最佳护理所需内容的期望进行了有限的研究。因此，本研究旨在探讨中国家庭护理人员对痴呆症护理支持和服务的期望。方法采用半结构化访谈的定性研究，从三家公立三级医院收集数据，这些医院于2019年5月至12月招募了痴呆症患者（N=21）的主要家庭护理人员。采用有目的的最大变异抽样来招募参与者。使用专题分析对数据进行归纳和演绎解释。调查结果确定了四个主题。据家庭护理人员报告，他们在痴呆症护理方面的支持微乎其微，他们几乎没有希望得到支持。然而，大多数护理人员表达了他们有限的期望，例如政府的财政支持和社区的临时护理服务。护理人员认为护理是他们的职责，他们中的一些人不愿意把患有痴呆症的亲属搬进疗养院。结论中国的卫生和三级长期护理系统没有做好应对痴呆症护理挑战的准备，这表明有必要发展卫生和社会服务，改善对家庭护理人员的支持，以改善对痴呆症患者的护理。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Dementia-International Journal of Social Research and Practice GERONTOLOGY-

CiteScore

5.60

自引率

12.50%

发文量

114

期刊介绍： Dementia acts as a major forum for social research of direct relevance to improving the quality of life and quality of care for people with dementia and their families. For the first time an international research journal is available for academics and practitioners that has as its primary paradigm the lived experience of dementia.