Ilaria Pannacci, Camilla de Laurentis, Paola Cristaldi, Tommaso Renzetti, Riccarda Armani, Luca Pianura, Veronica Recchiuti, Adelina Carlesi, Francesca Santato, Marina Franci, Laura Serafini, Barbara Latini, Carlo Efisio Marras
{"title":"Craniopagus: a proposed nursing care protocol.","authors":"Ilaria Pannacci, Camilla de Laurentis, Paola Cristaldi, Tommaso Renzetti, Riccarda Armani, Luca Pianura, Veronica Recchiuti, Adelina Carlesi, Francesca Santato, Marina Franci, Laura Serafini, Barbara Latini, Carlo Efisio Marras","doi":"10.7748/ncyp.2023.e1485","DOIUrl":null,"url":null,"abstract":"<p><p>Craniopagus is a rare condition in which the skulls of conjoined twins, and the neurovascular structures in their skulls, are incompletely separated. Separation surgery is complex and requires a range of skills and expertise, including from all the nursing teams involved. A multidisciplinary group of professionals in a tertiary paediatric care setting in Italy developed a comprehensive protocol for the nursing care of craniopagus twins in hospital, informed by the findings of a literature review and the expertise of its members. The protocol was applied to the management of a pair of craniopagus twins who successfully underwent separation surgery at the authors' hospital. The protocol describes the crucial role of nurses in the care of craniopagus twins and their families before, during and after separation surgery.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"25-33"},"PeriodicalIF":0.0000,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Nursing children and young people","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.7748/ncyp.2023.e1485","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/10/16 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"Medicine","Score":null,"Total":0}
引用次数: 0
Abstract
Craniopagus is a rare condition in which the skulls of conjoined twins, and the neurovascular structures in their skulls, are incompletely separated. Separation surgery is complex and requires a range of skills and expertise, including from all the nursing teams involved. A multidisciplinary group of professionals in a tertiary paediatric care setting in Italy developed a comprehensive protocol for the nursing care of craniopagus twins in hospital, informed by the findings of a literature review and the expertise of its members. The protocol was applied to the management of a pair of craniopagus twins who successfully underwent separation surgery at the authors' hospital. The protocol describes the crucial role of nurses in the care of craniopagus twins and their families before, during and after separation surgery.
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