Bereaved Caregivers' Experiences of End of Life Care For People With Advanced Heart Failure: A Narrative Synthesis.

Omega Pub Date : 2025-03-01 Epub Date: 2022-09-13 DOI:10.1177/00302228221124636

Melanie F J Diggle, Sue Schutz, Dan Butcher

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Abstract

Background: Heart Failure is a life-limiting condition with a poor and uniquely unpredictable prognosis. The aim of this review is to present and synthesise the current evidence around bereaved caregivers' experiences of end of life care for people with Heart Failure.

Methods: A systematic review of the literature was conducted using four electronic databases (CINHAL, Medline, BND, PsycINFO). Data was analysed and presented using a narrative synthesis approach.

Results: Eight articles were included within this review. Themes included: Limited and inadequate communication around the condition (including prognosis, preparations for death and the aim of palliative care), the burden of caregiving, and the limited provision of services and formal support.

Conclusion: Bereaved caregivers experience unique and significant challenges when caring for someone dying from Heart Failure. However, further research is required to greater understand the experiences of bereaved caregivers of people with Heart Failure.

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晚期心力衰竭患者临终关怀的遗属照顾者的经历：叙事综述》。

背景介绍心力衰竭是一种危及生命的疾病，其预后较差且难以预测。本综述旨在介绍和综合有关心衰患者临终关怀的遗属照顾者的经验的现有证据：使用四个电子数据库（CINHAL、Medline、BND、PsycINFO）对文献进行了系统性综述。结果：本综述共收录了八篇文章：本综述共收录了八篇文章。主题包括围绕病情（包括预后、死亡准备和姑息关怀的目的）的沟通有限且不充分、照顾者的负担以及提供的服务和正式支持有限：丧亲照顾者在照顾心衰患者时会遇到独特而重大的挑战。然而，要进一步了解心衰患者遗属照护者的经历，还需要进一步的研究。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Omega

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