A Pilot Study Delivering Physiotherapy Support for Rett Syndrome Using a Telehealth Framework Suitable for COVID-19 Lockdown.

IF 1.1 4区医学 Q4 CLINICAL NEUROLOGY

Developmental Neurorehabilitation Pub Date : 2021-08-01 Epub Date: 2021-04-15 DOI:10.1080/17518423.2021.1914762

Meir Lotan, Jenny Downs, Cochavit Elefant

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引用次数: 14

Abstract

Background: Rett syndrome (RTT) is a genetically caused neurodevelopmental disorder associated with severe disability. We assessed the feasibility of a telehealth program supporting gross motor skills in RTT.Methods: Five girls with RTT were assessed and a home-based exercise program developed in response to functional goals. Families then participated in monthly Skype sessions for 6 months, guided by a physiotherapist to monitor progress and adjust the program as necessary. Goal Attainment Scaling was used to evaluate progress and a parental satisfaction questionnaire was administered.Results: Four goals were established for each participant and progress was greater than would be expected in 16 of 20 goals. Parents evaluated the program as feasible and useful for their daughters.Discussion: A telehealth model of home-based intervention supported individuals with RTT to achieve gross motor skills and was found to be feasible. This model is important at present times during COVID-19 outbreak and lockdown.

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使用适合COVID-19封锁的远程医疗框架为Rett综合征提供物理治疗支持的试点研究

背景:Rett综合征(RTT)是一种与严重残疾相关的遗传性神经发育障碍。我们评估了远程医疗计划在RTT中支持大肌肉运动技能的可行性。方法:对5名患有RTT的女孩进行评估，并根据功能目标制定了基于家庭的锻炼计划。然后，家庭参加了为期6个月的每月Skype会议，由物理治疗师指导，以监测进展并根据需要调整计划。目标实现量表用于评估进展，并进行家长满意度问卷调查。结果:为每位参与者建立了4个目标，20个目标中有16个目标的进展大于预期。家长们评价这个项目对他们的女儿是可行和有用的。讨论:一种基于家庭干预的远程医疗模式支持RTT患者实现大肌肉运动技能，并被发现是可行的。在当前COVID-19爆发和封锁期间，这种模式非常重要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Developmental Neurorehabilitation CLINICAL NEUROLOGY-PEDIATRICS

CiteScore

3.10

自引率

0.00%

发文量

审稿时长

6-12 weeks

期刊介绍： Developmental Neurorehabilitation aims to enhance recovery, rehabilitation and education of people with brain injury, neurological disorders, and other developmental, physical and intellectual disabilities. Although there is an emphasis on childhood, developmental disability can be considered from a lifespan perspective. This perspective acknowledges that development occurs throughout a person’s life and thus a range of impairments or diseases can cause a disability that can affect development at any stage of life.