From compassion to action: perinatal palliative care at the Bonifratres Medical Centre (2014-2023) - part one.

IF 1
Katarzyna A Urbanska, Anna Jarosz-Lesz, Magdalena Wasek-Buko, Beata M Naworska, Rafal Stojko, Jakub Staniczek, Agnieszka B Drosdzol-Cop
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Abstract

Objectives: In recent years, advances in prenatal diagnostics have enabled the identification of congenital abnormalities, including genetically determined disorders, at an early stage of fetal development. Diagnosing a lethal fetal anomaly affects the entire family and is often a traumatic experience for the parents. Perinatal palliative care provided by perinatal hospice is a model of specialized care for families following the prenatal diagnosis of a lethal fetal condition.

Material and methods: After ten years of operation, we analyzed the perinatal palliative care protocol implemented in the Hospital of the Brothers Hospitallers in Katowice, a part of Bonifratres Medical Centre.

Results: We aimed to present the model of perinatal and postnatal care developed at the hospital for families receiving such support in the Silesian agglomeration.

Conclusions: We also wanted to show the importance of perinatal palliative care provided by one team from the prenatal period through delivery until the child's death or until the pediatric hospice provides the care of the child.

从同情到行动:Bonifratres医疗中心的围产期姑息治疗(2014-2023年)。
目的:近年来,产前诊断的进展使在胎儿发育的早期阶段识别先天性异常,包括遗传决定的疾病。诊断致命的胎儿异常会影响到整个家庭,对父母来说往往是一种痛苦的经历。围产期临终关怀医院提供的围产期姑息治疗是一种针对产前诊断出致命胎儿状况的家庭的专门护理模式。材料和方法:经过十年的操作,我们分析了在卡托维兹兄弟医院实施的围产期姑息治疗方案,该医院是Bonifratres医疗中心的一部分。结果:我们的目的是提出围产儿和产后护理的模式,在医院开发的家庭接受这样的支持在西里西亚集聚。结论:我们也想显示围产期姑息治疗的重要性,由一个团队提供,从产前到分娩,直到孩子死亡,或直到儿科临终关怀提供照顾的孩子。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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