The UNI-AJA Project: A Feasibility Study Based on Real-World Data in French Adolescents and Young Adults with Cancer.

IF 1.2 4区医学 Q4 ONCOLOGY

Journal of adolescent and young adult oncology Pub Date : 2025-07-14 DOI:10.1177/21565333251359614

Emmanuel Desandes, Alizée Diatchenko, Hugo Crochet, Nicolas André, Jean-Yves Blay, Nathalie Gaspar, Lionnel Geoffrois, Sabine Heinrich, Pierre Kubicek, Valérie Laurence, Pierre Leblond, Cyril Lervat, Lise Molimard, Marilyne Poirée, Marion Salomon, Jill Serre, Maud Toulmonde, Pascale Varlet, Thierry Durand, Françoise Ducimetière, Perrine Marec-Berard

引用次数: 0

Abstract

The UNI-AJA project is a French epidemiological study analyzing cancer care pathways and outcomes in adolescents and young adults (AYAs, 15-29 years) from 2009 to 2022. Using data from 10 health institutions and national databases, it will examine treatment types, delays, second cancers, long-term effects, and causes of death. The study will employ deterministic linkage for comprehensive patient tracking. It will assess care evolution, the impact of AYA-specific structures, and treatment consequences. Findings will support improved cancer management and policy decisions in France. This project may lay the foundation for a national clinico-epidemiological database for AYAs with cancer.

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UNI-AJA项目：基于法国青少年和青年癌症患者真实世界数据的可行性研究。

UNI-AJA项目是一项法国流行病学研究，分析2009年至2022年青少年和年轻人（15-29岁）的癌症护理途径和结果。利用来自10个卫生机构和国家数据库的数据，它将检查治疗类型、延误、第二次癌症、长期影响和死亡原因。该研究将采用确定性联系进行全面的患者跟踪。它将评估护理的演变、aya特异性结构的影响以及治疗后果。研究结果将支持改善法国的癌症管理和政策决定。该项目可为建立aya癌症患者的国家临床流行病学数据库奠定基础。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of adolescent and young adult oncology ONCOLOGY-

CiteScore

3.70

自引率

15.00%

发文量

114

期刊介绍： Journal of Adolescent and Young Adult Oncology (JAYAO) breaks new ground as the first cancer journal dedicated to all aspects of adolescent and young adult (AYA)-aged cancer patients and survivors. JAYAO is the only central forum for peer-reviewed articles, reviews, and research in the field, bringing together all AYA oncology stakeholders and professionals across disciplines, including clinicians, researchers, psychosocial and supportive care providers, and pediatric and adult cancer institutions.