Use of a Wearable Self-Tracking Instrument by Refugees With Complex Posttraumatic Stress Disorder: A Qualitative Study of Psychotherapeutic Mediation and Engagement.

IF 2 Q3 HEALTH CARE SCIENCES & SERVICES
Lisa Groenberg Riisager, Stine Bjerrum Moeller, Jakob Eg Larsen, Thomas Blomseth Christiansen, Jesper Aagaard, Lotte Huniche
{"title":"Use of a Wearable Self-Tracking Instrument by Refugees With Complex Posttraumatic Stress Disorder: A Qualitative Study of Psychotherapeutic Mediation and Engagement.","authors":"Lisa Groenberg Riisager, Stine Bjerrum Moeller, Jakob Eg Larsen, Thomas Blomseth Christiansen, Jesper Aagaard, Lotte Huniche","doi":"10.2196/70511","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Wearable self-tracking technologies are increasingly used in mental health care to enhance engagement and personalize treatment. However, most existing instruments focus on passive data collection or predefined symptom monitoring. Less attention has been given to tools that enable patients to actively track personally meaningful, self-defined mental health experiences as part of psychotherapy, particularly in vulnerable populations such as refugees with complex posttraumatic stress disorder (CPTSD).</p><p><strong>Objective: </strong>This study aimed to explore how the One Button Tracker (OBT), a novel single-purpose wearable self-tracking instrument that enables in-the-moment active registration of self-defined, personally relevant mental health phenomena, supports therapeutic engagement among refugees receiving psychotherapeutic treatment for CPTSD.</p><p><strong>Methods: </strong>This qualitative study was part of a larger participatory action research project conducted from 2022 to 2024 at a specialized clinic for trauma-affected refugees in Denmark. A total of 9 adult refugees diagnosed with CPTSD used the OBT during psychotherapy to actively track a personally relevant and collaboratively defined target phenomenon through a button press. The OBT provided vibrotactile feedback and stored timestamped data for therapeutic use. A total of 25 semistructured interviews were conducted across 3 time points: before, during, and after treatment. Reflexive thematic analysis guided by a postphenomenological framework was used to explore how the technologies mediate experience.</p><p><strong>Results: </strong>Participants (6 women and 3 men, median age 47 years, IQR 31-57 years) had lived in Denmark for an average of 21.4 years. The duration of OBT use ranged from 22 to 366 days. Participants tracked between 2 and 14 different phenomena and registered between 37 and 4733 events in total during their courses of treatment. Thematic analysis revealed five central themes that captured the multistable character of the OBT: (1) from external instrument to extension of the self, (2) mental switch, (3) faithful companion, (4) scarlet letter, and (5) emergency lifeline. Patients described the OBT as a meaningful anchor in distressing moments, enhancing emotional regulation, self-awareness, and continuity between sessions. The OBT's vibrotactile feedback was experienced as affirming and responsive, reinforcing a sense of being acknowledged and connected, even in the absence of direct therapist contact. However, the visibility of the OBT also introduced challenges, including stigma and altered social dynamics.</p><p><strong>Conclusions: </strong>The OBT functioned as an active mediator in therapy. It supported in-the-moment tracking of personal experiences, encouraged agency and emotional regulation, and helped patients feel connected to their therapist outside of sessions. The vibrotactile feedback played a key role in how the OBT was embodied and interpreted. These findings highlight the value of designing digital mental health technologies incorporating active self-tracking that emphasize relational use, experiential meaning, and personalization. A focus on simplistic design, adaptability, and patient-defined use may enhance therapeutic relevance, especially in settings where stigma or complexity limits engagement.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e70511"},"PeriodicalIF":2.0000,"publicationDate":"2025-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12267087/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"JMIR Formative Research","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.2196/70511","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

Abstract

Background: Wearable self-tracking technologies are increasingly used in mental health care to enhance engagement and personalize treatment. However, most existing instruments focus on passive data collection or predefined symptom monitoring. Less attention has been given to tools that enable patients to actively track personally meaningful, self-defined mental health experiences as part of psychotherapy, particularly in vulnerable populations such as refugees with complex posttraumatic stress disorder (CPTSD).

Objective: This study aimed to explore how the One Button Tracker (OBT), a novel single-purpose wearable self-tracking instrument that enables in-the-moment active registration of self-defined, personally relevant mental health phenomena, supports therapeutic engagement among refugees receiving psychotherapeutic treatment for CPTSD.

Methods: This qualitative study was part of a larger participatory action research project conducted from 2022 to 2024 at a specialized clinic for trauma-affected refugees in Denmark. A total of 9 adult refugees diagnosed with CPTSD used the OBT during psychotherapy to actively track a personally relevant and collaboratively defined target phenomenon through a button press. The OBT provided vibrotactile feedback and stored timestamped data for therapeutic use. A total of 25 semistructured interviews were conducted across 3 time points: before, during, and after treatment. Reflexive thematic analysis guided by a postphenomenological framework was used to explore how the technologies mediate experience.

Results: Participants (6 women and 3 men, median age 47 years, IQR 31-57 years) had lived in Denmark for an average of 21.4 years. The duration of OBT use ranged from 22 to 366 days. Participants tracked between 2 and 14 different phenomena and registered between 37 and 4733 events in total during their courses of treatment. Thematic analysis revealed five central themes that captured the multistable character of the OBT: (1) from external instrument to extension of the self, (2) mental switch, (3) faithful companion, (4) scarlet letter, and (5) emergency lifeline. Patients described the OBT as a meaningful anchor in distressing moments, enhancing emotional regulation, self-awareness, and continuity between sessions. The OBT's vibrotactile feedback was experienced as affirming and responsive, reinforcing a sense of being acknowledged and connected, even in the absence of direct therapist contact. However, the visibility of the OBT also introduced challenges, including stigma and altered social dynamics.

Conclusions: The OBT functioned as an active mediator in therapy. It supported in-the-moment tracking of personal experiences, encouraged agency and emotional regulation, and helped patients feel connected to their therapist outside of sessions. The vibrotactile feedback played a key role in how the OBT was embodied and interpreted. These findings highlight the value of designing digital mental health technologies incorporating active self-tracking that emphasize relational use, experiential meaning, and personalization. A focus on simplistic design, adaptability, and patient-defined use may enhance therapeutic relevance, especially in settings where stigma or complexity limits engagement.

复杂创伤后应激障碍难民使用可穿戴自我跟踪仪:心理治疗调解和参与的定性研究。
背景:可穿戴式自我跟踪技术越来越多地应用于精神卫生保健,以提高参与度和个性化治疗。然而,大多数现有仪器侧重于被动数据收集或预定义症状监测。作为心理治疗的一部分,特别是在患有复杂创伤后应激障碍(CPTSD)的难民等弱势群体中,使患者能够积极追踪个人有意义的、自我定义的心理健康经历的工具得到的关注较少。目的:本研究旨在探索一键追踪器(OBT)是一种新型的单一用途可穿戴自我追踪设备,能够实时主动记录自我定义的、与个人相关的心理健康现象,如何支持接受CPTSD心理治疗的难民的治疗参与。方法:这项定性研究是2022年至2024年在丹麦一家专门为受创伤影响的难民开展的一项更大的参与性行动研究项目的一部分。共有9名诊断为慢性创伤后应激障碍的成年难民在心理治疗期间使用OBT,通过按下按钮积极跟踪个人相关和协作定义的目标现象。OBT提供振动触觉反馈和存储时间戳数据用于治疗。在治疗前、治疗中和治疗后三个时间点共进行了25次半结构化访谈。在后现象学框架的指导下,反思性主题分析被用于探索技术如何中介经验。结果:参与者(6女3男,中位年龄47岁,IQR 31-57岁)在丹麦平均生活21.4年。OBT治疗的持续时间为22 ~ 366天。参与者在治疗过程中追踪了2到14种不同的现象,总共记录了37到4733个事件。主题分析揭示了抓住OBT多重稳定性特征的五个中心主题:(1)从外部工具到自我延伸,(2)心理开关,(3)忠实伴侣,(4)红字,(5)应急生命线。患者将OBT描述为痛苦时刻的有意义的锚点,可以增强情绪调节、自我意识和疗程之间的连续性。OBT的振动触觉反馈被体验为肯定和响应,强化了一种被认可和联系的感觉,即使在没有直接接触治疗师的情况下。然而,OBT的可见性也带来了挑战,包括污名化和社会动态的改变。结论:目标行为在治疗中起着积极的中介作用。它支持即时跟踪个人经历,鼓励能动性和情绪调节,并帮助患者在治疗之外与治疗师建立联系。振动触觉反馈在目标任务的体现和解释中起着关键作用。这些发现突出了设计数字心理健康技术的价值,这些技术包括强调关系使用、经验意义和个性化的主动自我跟踪。专注于简化设计、适应性和患者定义的使用可能会增强治疗相关性,特别是在污名或复杂性限制参与的环境中。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
JMIR Formative Research
JMIR Formative Research Medicine-Medicine (miscellaneous)
CiteScore
2.70
自引率
9.10%
发文量
579
审稿时长
12 weeks
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信