Management of Congenital Diaphragmatic Hernia (CDH) care: Addressing what matters to patients and their families?

IF 2.9 3区医学 Q1 PEDIATRICS

Seminars in Fetal & Neonatal Medicine Pub Date : 2025-07-01 DOI:10.1016/j.siny.2025.101651

K Saint Denny, J Lawer, S Mur, T M Prentice

引用次数: 0

Abstract

Despite advances in care, Congenital Diaphragmatic Hernia remains a complex and challenging condition to manage and is often associated with long term morbidity. Families are required to navigate considerable uncertainty, challenges in prognostication and communication, and must adapt to an evolving clinical trajectory. This review addresses considerations and practical tips for healthcare professionals to improve the family and patient experience from diagnosis to adult care, from the perspective of clinicians and CDH families. This paper emphasizes the importance of including those with lived experience with CDH in defining topics of priority in research and in clinical and support interventions.

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先天性膈疝（CDH）护理的管理：解决什么对患者及其家属重要？

尽管在护理方面取得了进步，先天性膈疝仍然是一个复杂而具有挑战性的疾病，通常与长期发病率有关。家庭需要应对相当大的不确定性，在预测和沟通方面的挑战，并且必须适应不断发展的临床轨迹。本综述从临床医生和CDH家庭的角度，阐述了医疗保健专业人员从诊断到成人护理改善家庭和患者体验的注意事项和实用提示。本文强调了在确定研究和临床及支持干预的优先主题时，包括那些有CDH生活经验的人的重要性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Seminars in Fetal & Neonatal Medicine 医学-小儿科

CiteScore

6.40

自引率

3.30%

发文量

审稿时长

6-12 weeks

期刊介绍： Seminars in Fetal & Neonatal Medicine (formerly Seminars in Neonatology) is a bi-monthly journal which publishes topic-based issues, including current ''Hot Topics'' on the latest advances in fetal and neonatal medicine. The Journal is of interest to obstetricians and maternal-fetal medicine specialists. The Journal commissions review-based content covering current clinical opinion on the care and treatment of the pregnant patient and the neonate and draws on the necessary specialist knowledge, including that of the pediatric pulmonologist, the pediatric infectious disease specialist, the surgeon, as well as the general pediatrician and obstetrician. Each topic-based issue is edited by an authority in their field and contains 8-10 articles. Seminars in Fetal & Neonatal Medicine provides: • Coverage of major developments in neonatal care; • Value to practising neonatologists, consultant and trainee pediatricians, obstetricians, midwives and fetal medicine specialists wishing to extend their knowledge in this field; • Up-to-date information in an attractive and relevant format.