Unmet needs and nursing home placements in Black, Latino, and White people living with dementia

IF 13 1区医学 Q1 CLINICAL NEUROLOGY

Alzheimer's & Dementia Pub Date : 2025-06-25 DOI:10.1002/alz.70265

Jasmine Travers Altizer, Shivani Shenoy, Anisha Balaji, Marissa Bergh, Aasha Raval, Andreina Jimenez

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引用次数: 0

Abstract

BACKGROUND

Many nursing home (NH) placements are avoidable considering equivalent care is possible in community settings.

METHODS

This qualitative descriptive study explored the unmet needs and related barriers that drive avoidable NH placements among Black, Hispanic/Latino, and White persons living with dementia (PLWD). Interviews were conducted with PLWD, family care partners, and NH staff, from two New York NHs along with aging policy experts.

FINDINGS

Seven distinct themes specific to unmet needs emerged from interviews including (1) assistance with activities of daily living and basic home maintenance; (2) resources and services; (3) treatment-related services; (4) socialization; (5) individual preferences; (6) function of the home (e.g., unaddressed home modification needs); and (7) equipped, available, and supported family. Barriers contributing to unmet needs included awareness, knowledge, availability, affordability, and acceptability of resources, services, and supports.

DISCUSSION

Strategies to address these unmet needs and improve community-based services may help reduce these NH placements.

Highlights

Many people living with dementia can remain at home with necessary supports.
There is limited paid and unpaid assistance to support people living with dementia.
Navigating the complex landscape of services in the community is challenging.

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黑人、拉丁裔和白人痴呆症患者的未满足需求和养老院安置

背景：许多养老院（NH）的安置是可以避免的，因为在社区环境中可以提供同等的护理。方法：本定性描述性研究探讨了黑人、西班牙裔/拉丁裔和白人痴呆症患者（PLWD）中未满足的需求和相关障碍，这些需求和障碍推动了可避免的NH安置。采访了PLWD，家庭护理合作伙伴和NH工作人员，来自两个纽约NHs以及老龄化政策专家。从访谈中可以发现七个不同的主题，具体到未满足的需求，包括：(1)协助日常生活活动和基本的家庭维护；（二）资源和服务；(3)治疗相关服务；(4)社会化;(5)个人偏好；(6)家庭的功能（例如，未解决的家庭改造需求）；(7)有装备、可用和支持的家庭。导致需求未得到满足的障碍包括对资源、服务和支持的认识、知识、可用性、可负担性和可接受性。解决这些未满足需求和改善社区服务的策略可能有助于减少这些NH安置。许多痴呆症患者可以在必要的支持下呆在家里。为痴呆症患者提供的有偿和无偿援助有限。在社区服务的复杂景观中导航是具有挑战性的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Alzheimer's & Dementia 医学-临床神经学

CiteScore

14.50

自引率

5.00%

发文量

299

审稿时长

3 months

期刊介绍： Alzheimer's & Dementia is a peer-reviewed journal that aims to bridge knowledge gaps in dementia research by covering the entire spectrum, from basic science to clinical trials to social and behavioral investigations. It provides a platform for rapid communication of new findings and ideas, optimal translation of research into practical applications, increasing knowledge across diverse disciplines for early detection, diagnosis, and intervention, and identifying promising new research directions. In July 2008, Alzheimer's & Dementia was accepted for indexing by MEDLINE, recognizing its scientific merit and contribution to Alzheimer's research.