[The transition from child to adult health care for youths with neurodevelopmental conditions - a challenge].

Abstract

The transition from child to adult health care is particularly challenging for youths with neurodevelopmental conditions, and there is a considerable risk of not receiving sufficient care. In Sweden, national and regional guidelines on the transition process for psychiatry and habilitation services exist, describing the important steps. Still, there is a lack of explicit quality indicators and evaluation, making it difficult to know explicit results. The role of physicians in this process is sparsely described in the guidelines. Youths, especially those with autism, express dissatisfaction with the transition to adult health care and with the care itself. Further development of person-centered care, evaluation, and follow-up of the transition process as well as cooperation between different care providers and support systems is recommended. Existing research evidence regarding specific transition interventions for this age group needs to be applied.