Key Outcomes for a Vocational Rehabilitation Intervention for People With Multiple Sclerosis: A Nominal Group Technique Study

IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Blanca De Dios Perez, Caolan Senior, Roshan das Nair, Denise Kendrick, Nikos Evangelou, Ian Newsome, Kate Radford
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引用次数: 0

Abstract

Background

Job retention vocational rehabilitation (VR) interventions for people with multiple sclerosis (MS) can positively impact a person's independence and directly influence health and employment outcomes. However, evaluating the effectiveness of VR interventions can be challenging due to their highly individualised nature and the diverse range of potential health and employment outcomes that may be impacted.

Aim

To identify the most important outcomes of a job retention VR intervention from the perspective of people with MS.

Design

A nominal group technique (NGT) was conducted with people with MS using Microsoft Teams and Microsoft Forms. The study involved completing a demographic questionnaire, being introduced to VR, silently generating ideas, round-robin discussions, ranking outcomes and reaching a consensus. NGT data were analysed using thematic analysis.

Results

We conducted two NGTs involving 10 participants with MS. Nine outcomes were identified and ranked based on priority, relating to four themes: (1) Employer support and collaboration; (2) Empowerment; (3) Symptom management and progression and (4) Professional well-being and performance.

Conclusion

Improvements in employer support and symptom management were seen as key outcomes for VR interventions that could eventually lead to enhanced work performance and job retention for people with MS. Future research should explore how feasible it is to collect these outcomes to ascertain the impact of VR on employment over time. Due to the complexity of the outcomes identified, there may be a need to develop new outcome measures with improved validity and sensitivity to these interventions.

Patient or Public Contribution

This study is part of a larger project co-developed with three people MS. A lead patient and public involvement representative and lay co-author reviewed the study topic guide to improve clarity and study focus and supported the group discussions and data analysis with input from the lead researcher.

多发性硬化症患者职业康复干预的主要结果:一项名义小组技术研究
背景:针对多发性硬化症(MS)患者的职业康复(VR)干预可以对患者的独立性产生积极影响,并直接影响健康和就业结果。然而,评估虚拟现实干预措施的有效性可能具有挑战性,因为其高度个性化的性质以及可能受到影响的潜在健康和就业结果的多样性。目的从MS患者的角度确定工作保留VR干预的最重要结果。设计采用Microsoft Teams和Microsoft Forms对MS患者进行了名义群体技术(NGT)。这项研究包括完成一份人口调查问卷,被介绍给虚拟现实,默默地产生想法,循环讨论,对结果进行排名并达成共识。对NGT数据进行专题分析。结果我们进行了两次NGTs,涉及10名ms参与者,根据优先级确定了9个结果并对其进行了排名,涉及四个主题:(1)雇主支持和协作;(2)授权;(3)症状管理和进展;(4)职业幸福感和表现。雇主支持和症状管理的改善被视为虚拟现实干预的关键结果,最终可能导致ms患者的工作绩效和工作保留率的提高,未来的研究应该探索收集这些结果的可行性,以确定虚拟现实对就业的影响。由于所确定的结果的复杂性,可能需要开发新的结果测量方法,以提高这些干预措施的有效性和敏感性。患者或公众贡献本研究是与ms共同开发的一个更大项目的一部分。一名主要的患者和公众参与代表和非作者共同审查了研究主题指南,以提高清晰度和研究重点,并通过主要研究人员的输入支持小组讨论和数据分析。
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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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