Standards and infrastructure for multisite deployment of the research participant perception survey.

IF 3.4 Q2 HEALTH CARE SCIENCES & SERVICES

JAMIA Open Pub Date : 2025-03-12 eCollection Date: 2025-04-01 DOI:10.1093/jamiaopen/ooaf017

Alex C Cheng, Eva Bascompte Moragas, Ellis Thomas, Lindsay O'Neal, Paul A Harris, Ranee Chatterjee, James Goodrich, Jamie Roberts, Sameer Cheema, Sierra Lindo, Daniel E Ford, Liz Martinez, Scott Carey, Ann Dozier, Carrie Dykes, Pavithra Panjala, Lynne Wagenknecht, Joseph E Andrews, Janet Shuping, Derick Burgin, Nancy S Green, Siddiq Mohammed, Sana Khoury-Shakour, Lisa Connally, Cameron Coffran, Adam Qureshi, Natalie Schlesinger, Rhonda G Kost

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Abstract

Objectives: To develop and disseminate a technical framework for administering the Research Participant Perception Survey (RPPS) and aggregating data across institutions using REDCap.

Materials and methods: Six RPPS Steering Committee (RSC) member institutions met bi-weekly to achieve consensus on survey sampling techniques, data standards, participant and study descriptor variables, and dashboard design.

Results: RSC members implemented the infrastructure to send the RPPS to participants and shared data to the Empowering the Participant Voice Consortium Database. Two pilot sites used the tools generated by the RSC to implement the RPPS.

Discussion: The RSC created a REDCap project setup file, an external module visual analytics dashboard, an English/Spanish language file, and an implementation guide.

Conclusion: The technical setup materials created by the RSC were effective in aiding new sites in implementing the RPPS and could help future sites adopt the RPPS to better understand participant experiences to improve research recruitment and retention.

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研究参与者感知调查多站点部署的标准和基础设施。

目标：开发和传播一个管理研究参与者感知调查（RPPS）的技术框架，并使用REDCap在各机构之间汇总数据。材料和方法：六个RPPS指导委员会（RSC）成员机构每两周举行一次会议，就调查抽样技术、数据标准、参与者和研究描述变量以及仪表板设计达成共识。结果：RSC成员实现了向参与者发送RPPS的基础设施，并将数据共享到授权参与者语音联盟数据库。两个试验点使用了RSC生成的工具来实施RPPS。讨论：RSC创建了一个REDCap项目设置文件，一个外部模块可视化分析仪表板，一个英语/西班牙语文件，以及一个实现指南。结论：RSC编制的技术设置材料可以有效地帮助新站点实施RPPS，并且可以帮助未来的站点更好地采用RPPS来了解参与者的体验，从而提高研究人员的招募和保留。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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