Enhancing patient engagement in cancer research: a focus on patient-centric approaches to scientific discovery.

IF 6.6 2区 医学 Q1 Biochemistry, Genetics and Molecular Biology
Estela Cepeda, Marina Reguero, Vanesa Abón, Marta Puyol
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引用次数: 0

Abstract

Patient engagement in healthcare and research empowers patients to actively participate in decision-making, treatment planning, and research design, fostering better treatment outcomes and relevance. However, barriers, such as power imbalances, structural limitations, a lack of awareness, and socioeconomic disparities, often hinder meaningful involvement, particularly for marginalized groups. Overcoming these challenges requires inclusive frameworks and infrastructures to promote collaboration among patients, researchers, and other stakeholders. Initiatives like the Patient Engagement Open Forum or World Cancer Research Day underscore the importance of patient-centered approaches. By fostering trust, transparency, and shared decision-making, a more inclusive and impactful healthcare and research ecosystem can be achieved.

患者参与医疗保健和研究可使患者积极参与决策、治疗规划和研究设计,从而提高治疗效果和相关性。然而,权力不平衡、结构性限制、缺乏意识以及社会经济差异等障碍往往会阻碍患者,尤其是边缘化群体有意义地参与其中。克服这些挑战需要包容性的框架和基础设施,以促进患者、研究人员和其他利益相关者之间的合作。患者参与开放论坛或世界癌症研究日等倡议强调了以患者为中心的方法的重要性。通过促进信任、透明度和共同决策,可以建立一个更具包容性和影响力的医疗保健和研究生态系统。
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来源期刊
Molecular Oncology
Molecular Oncology Biochemistry, Genetics and Molecular Biology-Molecular Medicine
CiteScore
11.80
自引率
1.50%
发文量
203
审稿时长
10 weeks
期刊介绍: Molecular Oncology highlights new discoveries, approaches, and technical developments, in basic, clinical and discovery-driven translational cancer research. It publishes research articles, reviews (by invitation only), and timely science policy articles. The journal is now fully Open Access with all articles published over the past 10 years freely available.
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