Enzo Vedrine, Claus Peter Schmitt, Johan Vande Walle, Diamant Shtiza, Klaus Arbeiter, Evelien Snauwaert, Danka Pokrajac, Dimitar Roussinov, Danko Milosevic, Elia Avraam, Jakub Zieg, Ida Maria Schmidt, Ylle Toots, Tuula Holtta, Günter Klaus, Varvara Askiti, Kalman Tory, Clodagh Sweeney, Enrico Verrina, Edite Jeruma, Augustina Jankauskiene, Valerie Said Conti, Branko Lutovac, Linda Koster-Kamphuis, Velibor Tasic, Anna Kristina Bjerre, Maria Szczepańska, Alberto Caldas Afonso, Andreea Liana Rãchişan, Brankica Spasojevic, Victor Janko, Gregor Novljan, Pedro J Ortega, Lisa Sartz, Sibylle Tschumi, Sevcan Azime Bakkaloglu, Jan Dudley, Dymtro D Ivanov, Rukshana Shroff, Bruno Ranchin
{"title":"Survey of legislative frameworks and national recommendations governing paediatric maintenance haemodialysis in Europe.","authors":"Enzo Vedrine, Claus Peter Schmitt, Johan Vande Walle, Diamant Shtiza, Klaus Arbeiter, Evelien Snauwaert, Danka Pokrajac, Dimitar Roussinov, Danko Milosevic, Elia Avraam, Jakub Zieg, Ida Maria Schmidt, Ylle Toots, Tuula Holtta, Günter Klaus, Varvara Askiti, Kalman Tory, Clodagh Sweeney, Enrico Verrina, Edite Jeruma, Augustina Jankauskiene, Valerie Said Conti, Branko Lutovac, Linda Koster-Kamphuis, Velibor Tasic, Anna Kristina Bjerre, Maria Szczepańska, Alberto Caldas Afonso, Andreea Liana Rãchişan, Brankica Spasojevic, Victor Janko, Gregor Novljan, Pedro J Ortega, Lisa Sartz, Sibylle Tschumi, Sevcan Azime Bakkaloglu, Jan Dudley, Dymtro D Ivanov, Rukshana Shroff, Bruno Ranchin","doi":"10.1007/s00467-025-06667-8","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The application of international recommendations for paediatric maintenance haemodialysis (HD) could be strengthened by national laws or written recommendations. Our aim was therefore to describe the national rules governing paediatric maintenance HD in European countries.</p><p><strong>Methods: </strong>A national representative, approved by the president of each paediatric nephrology society, was contacted in all 42 European countries to complete two online questionnaires.</p><p><strong>Results: </strong>Answers were received from 36 countries. The population served by HD centres varies from 83,000 to 1,197,000 residents below 18 years of age and the estimated mean number of children on HD per centre from 0.2 to 13.5. The lowest age at which a child can be dialysed in an adult centre varies from 0 to 18 years. Laws or written national recommendations specifying: this age, the need for a paediatrician as part of medical team in mixed adult-paediatric centres, the minimum number of doctors per centre and the number of patients per nurse or nurse's aide required during sessions exist in only 25, 22, 22, 44 and 8% of the countries, respectively. Similarly, dietitians, social workers, school service, psychologists and play specialists/youth workers are required by law or written national recommendations in 36, 28, 36, 31 and 14% of countries, respectively.</p><p><strong>Conclusion: </strong>Laws or written national recommendations for paediatric maintenance HD are rare in European countries and very heterogeneous when they exist. This calls for discussion among paediatric and adult nephrologists and health authorities on the organisation of safe and effective paediatric HD practices.</p>","PeriodicalId":19735,"journal":{"name":"Pediatric Nephrology","volume":" ","pages":""},"PeriodicalIF":2.6000,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Pediatric Nephrology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1007/s00467-025-06667-8","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PEDIATRICS","Score":null,"Total":0}
引用次数: 0
Abstract
Background: The application of international recommendations for paediatric maintenance haemodialysis (HD) could be strengthened by national laws or written recommendations. Our aim was therefore to describe the national rules governing paediatric maintenance HD in European countries.
Methods: A national representative, approved by the president of each paediatric nephrology society, was contacted in all 42 European countries to complete two online questionnaires.
Results: Answers were received from 36 countries. The population served by HD centres varies from 83,000 to 1,197,000 residents below 18 years of age and the estimated mean number of children on HD per centre from 0.2 to 13.5. The lowest age at which a child can be dialysed in an adult centre varies from 0 to 18 years. Laws or written national recommendations specifying: this age, the need for a paediatrician as part of medical team in mixed adult-paediatric centres, the minimum number of doctors per centre and the number of patients per nurse or nurse's aide required during sessions exist in only 25, 22, 22, 44 and 8% of the countries, respectively. Similarly, dietitians, social workers, school service, psychologists and play specialists/youth workers are required by law or written national recommendations in 36, 28, 36, 31 and 14% of countries, respectively.
Conclusion: Laws or written national recommendations for paediatric maintenance HD are rare in European countries and very heterogeneous when they exist. This calls for discussion among paediatric and adult nephrologists and health authorities on the organisation of safe and effective paediatric HD practices.
期刊介绍：
International Pediatric Nephrology Association
Pediatric Nephrology publishes original clinical research related to acute and chronic diseases that affect renal function, blood pressure, and fluid and electrolyte disorders in children. Studies may involve medical, surgical, nutritional, physiologic, biochemical, genetic, pathologic or immunologic aspects of disease, imaging techniques or consequences of acute or chronic kidney disease. There are 12 issues per year that contain Editorial Commentaries, Reviews, Educational Reviews, Original Articles, Brief Reports, Rapid Communications, Clinical Quizzes, and Letters to the Editors.
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