Exploring hope and expectations amidst the shadows: Navigating through the hearts of cancer patients admitted to a palliative care unit.

IF 1.9 4区 医学 Q3 HEALTH POLICY & SERVICES
Maria Nikoloudi, Florian Thanasko, Ioanna Tsatsou, Alexandra Mantoudi, Kyriaki Mystakidou
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Abstract

Objectives: The objective of this study is to conduct an in-depth exploration of the psychological well-being, hope, and expectations of cancer patients receiving care in a palliative care unit, utilizing a qualitative research approach.

Methods: We employed the methodology of interpretative phenomenological analysis (IPA). Our data collection involved conducting 1-hour semi-structured interviews with the patients. In the subsequent data analysis, we applied investigator triangulation to ensure rigor and reliability.

Results: Understanding patients' hope and expectations from palliative care is crucial as it can serve as an indicator of the quality of care and motivate care providers to fulfill these expectations as much as possible. Throughout the IPA, 3 superordinate themes emerged from the qualitative data: cancer diagnosis and the spectrum of emotions, hope and cancer patient, and oncology patient expectations of palliative care.

Significance of results: From the patient's perspective, making sense of their cancer experience involves managing symptoms, redefining their understanding of illness, adapting to functional changes, and fostering open communication among themselves, their families, physicians, and the palliative care team. This underscores the crucial necessity for an interdisciplinary approach and emphasizes the importance of reinforcing positive support systems. In essence, our study delves into the multifaceted psychological aspects of cancer patients in the context of palliative care, shedding light on their hope and expectations as they navigate the challenging terrain of cancer treatment and palliative support.

在阴影中探索希望和期望:通过姑息治疗部门收治的癌症患者的内心导航。
目的:本研究的目的是利用定性研究方法,深入探讨在姑息治疗单位接受治疗的癌症患者的心理健康、希望和期望。方法:采用解释性现象学分析(IPA)方法。我们的数据收集包括对患者进行1小时的半结构化访谈。在随后的数据分析中,我们采用了调查员三角测量来确保数据的严谨性和可靠性。结果:了解患者对姑息治疗的希望和期望是至关重要的,因为它可以作为护理质量的指标,并激励护理提供者尽可能地满足这些期望。在整个IPA中,定性数据中出现了3个重要主题:癌症诊断和情感谱,希望和癌症患者,以及肿瘤患者对姑息治疗的期望。结果的意义:从患者的角度来看,理解他们的癌症经历包括控制症状,重新定义他们对疾病的理解,适应功能变化,以及促进他们自己、家人、医生和姑息治疗团队之间的开放沟通。这强调了跨学科方法的关键必要性,并强调了加强积极支持系统的重要性。从本质上讲,我们的研究深入研究了姑息治疗背景下癌症患者的多方面心理方面,揭示了他们在癌症治疗和姑息治疗支持的挑战性领域中所面临的希望和期望。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Palliative & Supportive Care
Palliative & Supportive Care HEALTH POLICY & SERVICES-
CiteScore
4.10
自引率
9.10%
发文量
280
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