Validation of the Korean Version of the Huntington's Disease Quality of Life Battery for Carers.

IF 2.5 4区医学 Q2 CLINICAL NEUROLOGY

Journal of Movement Disorders Pub Date : 2024-12-30 DOI:10.14802/jmd.24217

Hee Jin Chang, Eungseok Oh, Won Tae Yoon, Chan Young Lee, Kyum-Yil Kwon, Yun Su Hwang, Chaewon Shin, Jee-Young Lee

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Abstract

Objectives: The Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) evaluates caregiver quality of life. This study aims to develop and validate the Korean version (K-HDQoL-C) to assess the burden on Korean caregivers of HD patients.

Methods: Nineteen HD caregivers (7 females, mean age 55.4±14.6 years) participated. The K-HDQoL-C, a translation of the English version, consisted of demographic information, caring aspects, life satisfaction, and feelings about life. It was administered twice, two weeks apart. Internal consistency was evaluated using Cronbach's α, and test-retest reliability was assessed with intraclass correlation coefficients. The relationship with the Zarit Burden Interview-12 (ZBI-12) was analyzed.

Results: Internal consistencies of K-HDQoL-C were 0.771 (part 2), 0.938 (part 3), and 0.891 (part 4). Test-retest reliability ranged from 0.908 to 0.936. Part 3 negatively correlated with ZBI-12, and part 4 positively correlated (R = -0.780, 0.923; p < 0.001).

Conclusion: The K-HDQoL-C effectively evaluates challenges faced by HD caregivers, particularly in care aspects and life satisfaction.

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韩国版亨廷顿氏病护理人员生活质量电池的验证。

目的：亨廷顿病护理人员生活质量电池（HDQoL-C）评估护理人员的生活质量。本研究旨在开发并验证韩国版（K-HDQoL-C），以评估韩国HD患者护理人员的负担。方法：19名HD护理人员（女性7名，平均年龄55.4±14.6岁）参与。K-HDQoL-C是英文版本的翻译，包括人口统计信息、关心方面、生活满意度和对生活的感受。注射两次，间隔两周。采用Cronbach’s α评价内部一致性，采用类内相关系数评价重测信度。分析其与ZBI-12量表的关系。结果：K-HDQoL-C的内部一致性分别为0.771 （part 2）、0.938 （part 3）和0.891 (part 4)，重测信度为0.908 ~ 0.936。第三部分与ZBI-12呈负相关，第四部分与ZBI-12呈正相关(R = -0.780, 0.923；P < 0.001)。结论：K-HDQoL-C能有效评估高清照护者面临的挑战，尤其是在照护方面和生活满意度方面。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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