Associations between income level and health outcomes in people with cystic fibrosis in Turkey.

IF 5.4 2区 医学 Q1 RESPIRATORY SYSTEM
Neval Metin Cakar, Seyda Karabulut, Mine Yuksel Kalyoncu, Merve Selcuk Balcı, Ceren Ayça Yıldız, Damla Kocaman, Burcu Uzunoglu, Gamze Tastan, Almala Pınar Ergenekon, Ela Erdem Eralp, Yasemin Gokdemir, Fazilet Karakoc, Bulent Karadag
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引用次数: 0

Abstract

Background: Our study aimed to identify the social domains that pose the greatest barriers to managing and supporting pwCF, particularly in relation to income levels.

Methods: To identify associations between income and health outcomes in pwCF in our center the shorter form of the survey "Your Current Life Situation" (YCLS) was used in face-to-face interviews. Participants were also asked to complete the validated Turkish versions of the 9-item Patient Health Questionnaire (PHQ-9) and the 7-item Generalized Anxiety Disorder scale (GAD-7) to assess depression and anxiety, respectively.

Results: In total, 282 pwCF were included in this study. 51.1 % were female (n = 144), mean (±SD) age was 13.8 (±8.7) years and 75 % (n = 211) were <18 years old. The median (IQR) values of pwCF; FEV1pp (percent predictive) 83 % (41-97), BMI (body mass index) 17 kg/m2 (15∼20), BMI z-score -0.1 (-1∼0.3). Of the pwCF in the study 89 % (n = 251) had an income below the poverty threshold and 21 % (n = 60) of them had an income below the hunger threshold. The results of YCLS survey showed that the highest level of insecurity was in the social domain (68.5 %, n = 193); this was followed by health and clinical care (62.1 %, n = 173), financial (37.9 %, n = 106), and food insecurity (37.2 %, n = 103). All individuals experiencing housing insecurity stated that they had requested help from local organisations.

Conclusion: The study highlights the substantial socioeconomic challenges faced by pwCF, a significant majority live below the poverty threshold and experience high levels of social and health insecurity, underscoring the need for comprehensive support systems to address these issues.

土耳其囊性纤维化患者收入水平与健康状况之间的关系。
研究背景我们的研究旨在确定哪些社会领域对管理和支持残疾人家庭构成了最大的障碍,尤其是与收入水平有关的领域:为了确定本中心贫困家庭患者的收入与健康结果之间的关系,我们在面对面访谈中使用了 "您目前的生活状况"(YCLS)调查的简表。此外,还要求参与者填写经过验证的土耳其版 9 项患者健康问卷(PHQ-9)和 7 项广泛性焦虑症量表(GAD-7),以分别评估抑郁和焦虑情况:本研究共纳入 282 名老年男性和女性。女性占 51.1%(n = 144),平均(±SD)年龄为 13.8(±8.7)岁,75%(n = 211)为 1pp(预测百分比)83%(41-97),BMI(体重指数)17 kg/m2 (15∼20),BMI z-score -0.1 (-1∼0.3)。研究中 89 %(n = 251)的儿童和青少年的收入低于贫困线,21 %(n = 60)的儿童和青少年的收入低于饥饿线。YCLS 调查结果显示,社会领域的不安全程度最高(68.5%,n = 193);其次是健康和临床护理(62.1%,n = 173)、经济(37.9%,n = 106)和食品不安全(37.2%,n = 103)。所有住房无保障的人都表示,他们曾向当地组织寻求帮助:这项研究强调了贫困家庭面临的巨大社会经济挑战,其中绝大多数人生活在贫困线以下,社会和健康极度无保障,这突出表明需要建立全面的支持系统来解决这些问题。
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来源期刊
Journal of Cystic Fibrosis
Journal of Cystic Fibrosis 医学-呼吸系统
CiteScore
10.10
自引率
13.50%
发文量
1361
审稿时长
50 days
期刊介绍: The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis. The journal also publishes news and articles concerning the activities and policies of the ECFS as well as those of other societies related the ECFS.
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