Components of home-based palliative and supportive care for adults with heart failure: A scoping review.

IF 3.6 2区医学 Q1 HEALTH CARE SCIENCES & SERVICES

Palliative Medicine Pub Date : 2024-10-30 DOI:10.1177/02692163241290350

Madhurangi Perera, Ureni Halahakone, Sameera Senanayake, Sanjeewa Kularatna, William Parsonage, Patsy Yates, Gursharan K Singh

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引用次数: 0

Abstract

Background: Palliative care and supportive care provided in the home for people with heart failure can improve quality of life, caregiver wellbeing and reduce healthcare costs. Identifying components of home-based palliative and supportive care in heart failure is useful to inform tailored care to people with heart failure.

Aim: To identify and describe components of home-based palliative and supportive care in adults with heart failure.

Design: A scoping review was undertaken in accordance with Joanna Briggs Institute guidelines. The protocol was registered prospectively with the Open Science Framework (https://doi.org/10.17605/OSF.IO/GHCME).

Data sources: Embase, PubMed, CINAHL and Cochrane databases were searched from inception in May 2023 and re-run in January 2024. Original research focussed on palliative and supportive care in the home setting that included adults diagnosed with heart failure who have not undergone nor awaiting a heart transplant was included.

Results: Results were extracted from 13 papers based on eight studies. The findings highlight that nurses supported by a multidisciplinary team, providing symptom management, patient and carer education and discussion of goals of care and advance care planning, facilitates home-based palliative and supportive care for people with heart failure.

Conclusion: Ensuring patient and caregiver-centred care supported by a multidisciplinary team is essential to delivering home-based palliative and supportive care for people with heart failure. Further research focussed on the role of digital interventions in home-based palliative and supportive care, the composition of the multidisciplinary team and research which includes individuals across all stages of heart failure is needed.

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针对成人心力衰竭患者的居家姑息和支持护理的组成部分：范围综述。

背景：在家中为心力衰竭患者提供姑息治疗和支持治疗可提高生活质量、改善护理人员的健康状况并降低医疗成本。确定心力衰竭居家姑息治疗和支持性护理的组成部分有助于为心力衰竭患者提供量身定制的护理服务：设计：根据乔安娜-布里格斯研究所（Joanna Briggs Institute）的指导原则进行范围界定研究。该方案在开放科学框架（https://doi.org/10.17605/OSF.IO/GHCME）上进行了前瞻性注册：从 2023 年 5 月开始检索 Embase、PubMed、CINAHL 和 Cochrane 数据库，并于 2024 年 1 月重新检索。检索对象包括被诊断为心力衰竭且未接受或等待心脏移植的成年人，重点关注家庭环境中的姑息和支持性护理：结果：从基于八项研究的 13 篇论文中提取了结果。研究结果表明，护士在多学科团队的支持下，提供症状管理、患者和照护者教育，并讨论护理目标和预先护理计划，有助于为心力衰竭患者提供居家姑息和支持性护理：结论：在多学科团队的支持下，确保以患者和护理者为中心的护理对于为心力衰竭患者提供居家姑息和支持性护理至关重要。需要进一步研究数字干预在居家姑息和支持护理中的作用、多学科团队的组成以及包括心力衰竭各阶段患者的研究。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Palliative Medicine 医学-公共卫生、环境卫生与职业卫生

CiteScore

7.60

自引率

9.10%

发文量

125

审稿时长

6-12 weeks

期刊介绍： Palliative Medicine is a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. This outstanding journal features editorials, original papers, review articles, case reports, correspondence and book reviews. Essential reading for all members of the palliative care team. This journal is a member of the Committee on Publication Ethics (COPE).