Alan P Cooper, Linda Nguyen, Oluwapolola Irelewuyi, Steven P Miller
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引用次数: 0
Abstract
It has become increasingly common for researchers to partner with patients as members of the research team and collaborate to use their lived experiences to shape research priorities, interventions, dissemination, and more. The patient-oriented research (POR) model has been adopted by both adult and pediatric health researchers. This cultural change to conducting pediatric health research brings with it new methodologies, tools, challenges, and benefits. In this review, we aim to provide guidance on how to conduct POR for pediatric populations using examples from the literature. We describe considerations for engagement before the project begins, for engagement across the research cycle, and for measurement and evaluation. We aim to show that conducting POR is feasible, beneficial, and that many common challenges and barriers can be overcome with preparation and usage of specific tools.
研究人员将患者作为研究团队的成员并与之合作，利用他们的生活经验来确定研究重点、干预措施、传播等，这种做法已变得越来越普遍。以患者为导向的研究（POR）模式已被成人和儿科健康研究人员所采用。这种开展儿科健康研究的文化变革带来了新的方法、工具、挑战和益处。在本综述中，我们旨在通过文献中的实例，为如何针对儿科人群开展 POR 提供指导。我们介绍了项目开始前的参与、整个研究周期的参与以及衡量和评估的注意事项。我们旨在说明，开展 POR 是可行的、有益的，许多常见的挑战和障碍都可以通过准备和使用特定工具来克服。
期刊介绍：
Children is an international, open access journal dedicated to a streamlined, yet scientifically rigorous, dissemination of peer-reviewed science related to childhood health and disease in developed and developing countries.
The publication focuses on sharing clinical, epidemiological and translational science relevant to children’s health. Moreover, the primary goals of the publication are to highlight under‑represented pediatric disciplines, to emphasize interdisciplinary research and to disseminate advances in knowledge in global child health. In addition to original research, the journal publishes expert editorials and commentaries, clinical case reports, and insightful communications reflecting the latest developments in pediatric medicine. By publishing meritorious articles as soon as the editorial review process is completed, rather than at predefined intervals, Children also permits rapid open access sharing of new information, allowing us to reach the broadest audience in the most expedient fashion.
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