Ethical governance for genomic data science in the cloud

IF 39.1 1区生物学 Q1 GENETICS & HEREDITY

Nature Reviews Genetics Pub Date : 2024-10-18 DOI:10.1038/s41576-024-00789-9

Vasiliki Rahimzadeh, Sarah C. Nelson, Adrian Thorogood, Jonathan Lawson, Stephanie M. Fullerton

引用次数: 0

Abstract

Cloud platforms offer distinct advantages, but questions remain about how to ethically and efficiently manage human genomic data in the cloud. Data governance needs to be adapted to ensure transparency and security for research participants, as well as equitable and sustainable access for researchers. Rahimzadeh et al. discuss the ethical, legal and social implications of storing and analysing human genomic data in the cloud and provide recommendations and new research directions for future, trustworthy cloud-based genomic data access and management.

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云端基因组数据科学的道德管理

云平台具有明显的优势，但如何在云平台上合乎伦理地有效管理人类基因组数据仍是个问题。需要对数据管理进行调整，以确保研究参与者的透明度和安全性，以及研究人员的公平和可持续访问。Rahimzadeh 等人讨论了在云中存储和分析人类基因组数据的伦理、法律和社会影响，并为未来基于云的可信基因组数据访问和管理提出了建议和新的研究方向。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Nature Reviews Genetics 生物-遗传学

CiteScore

57.40

自引率

0.50%

发文量

113

审稿时长

6-12 weeks

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