Design and validation of a questionnaire for monitoring neurological dysphagia and respiratory deterioration in patients with amyotrophic lateral sclerosis (DEREDELA)

Neurologia Pub Date : 2024-10-01 DOI:10.1016/j.nrleng.2024.09.003

S. Bermudo Fuenmayor , P.J. Serrano Castro , P. Quiroga Subirana , S. López Palmero , M.M. Requena Mullor , T. Parrón Carreño

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Abstract

Introduction

Amyotrophic lateral sclerosis (ALS) is a degenerative disease of unknown origin that affects the motor neurons. It has a rapid, fatal course.

Method

For this study, an initial questionnaire of eleven items was developed by experts in the field, who evaluated the suitability and relevance of the items.

Results

The questionnaire was then applied to a pilot group of 22 patients diagnosed with ALS. Confirmatory factor analysis, based on estimating maximum likelihood, confirmed the three domains detected in the exploratory factor analysis. The reliability of the scale was tested using Cronbach's α (0.801) and the Kaiser–Meyer–Olkin test (0.770) confirmed the construct validity.

Conclusions

The DEREDELA questionnaire is valid, in terms of its content, for monitoring the neurological dysphagia and respiratory deterioration suffered by patients diagnosed with ALS.

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设计并验证用于监测肌萎缩性脊髓侧索硬化症患者神经性吞咽困难和呼吸恶化的调查问卷（DEREDELA）

导言肌萎缩性脊髓侧索硬化症（ALS）是一种原因不明的退行性疾病，影响运动神经元。本研究由该领域的专家编制了一份包含 11 个项目的初始问卷，并由他们对这些项目的适用性和相关性进行了评估。基于最大似然估计的确认性因子分析证实了探索性因子分析中发现的三个领域。使用 Cronbach's α（0.801）检验了量表的可靠性，Kaiser-Meyer-Olkin 检验（0.770）证实了量表的建构效度。结论 DEREDELA 问卷的内容对于监测 ALS 患者的神经吞咽困难和呼吸衰竭是有效的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Neurologia

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审稿时长

53 weeks