A qualitative exploration of Maltese couples' care experiences of prostate cancer diagnosis and radiotherapy treatment

Abstract

Introduction

Although prostate cancer is male-specific, the diagnosis and treatment also affect close family members, particularly spouses. Following diagnosis, treatment choices have to be made and this may lead to a period of stress and confusion for both patient and their family. This study investigated couples' care experiences with prostate cancer from diagnosis to radiotherapy treatment in Malta.

Methods

A qualitative descriptive methodology was adopted using semi-structured interviews with twelve couples and two men. Data were collected between January and December 2019. The participants were recruited from a local oncology hospital in Malta. Data were analysed Thematically and included the identification of potential contrasts and overlaps between men and their spouses.

Results

A prostate cancer diagnosis and treatment was a significant source of distress for men and their spouses. Healthcare professionals did not consistently attend to the couple's concerns, such as perceived delays in the management of prostate cancer and the treatment decision-making process. Most couples did not disclose the diagnosis to wider family and friends and several men valued the experience of men who previously underwent prostate cancer treatment.

Conclusion

Ensuring that these couples receive the right information, support, and resources is crucial to assisting couples in navigating the challenges of the cancer journey effectively. When experiences were less positive, the communication process with healthcare professionals was not perceived as adequate, which negatively impacted their emotional well-being.

Implications for practice

Additional communication training for healthcare professionals may improve their recognition and response to the needs of service users. Information tailored to the needs of men and spouses may also be considered such as the use of digital tools or involving men who previously underwent treatment.