"Times of war and time of uncertain peace": Narratives of parents of childhood cancer survivors.

IF 1.5 4区医学 Q3 NURSING

Revista Latino-Americana De Enfermagem Pub Date : 2024-08-30 eCollection Date: 2024-01-01 DOI:10.1590/1518-8345.7005.4263

Rhyquelle Rhibna Neris, Ana Carolina Andrade Biaggi Leite, Elizabeth Papathanassoglou, Cristina Garcia-Vivar, Juliana de Souza, Lucila Castanheira Nascimento

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引用次数: 0

Abstract

Objective: to analyze the meaning attributed by parents to the extended and permanent survival of childhood cancer.

Method: qualitative narrative inquiry, developed with parents of adolescents and young adults who survived childhood cancer. Recruitment and data collection involved virtual and in-person approaches. The data were collected through semi-structured interviews. Data were analyzed according to reflective thematic analysis.

Results: a total of ten parents were included in the study. Two thematic narrative syntheses were constructed: "Times of war"; and "Time of uncertain peace", with their respective sub-themes. The cancer diagnosis marks the beginning of times of war in the parents' lives. They experience cancer treatment as "highs and lows" with potential threats to their children's lives. After that, "Time of uncertain peace" are reached, and the balance of the family unit is reestablished. However, the fear of recurrence makes the family peace uncertain, and its maintenance requires constant vigilance and attention to the signs and symptoms of a possible new battle.

Conclusion: the results highlight the experience of being a parent of a childhood cancer survivor and can be applied to develop models of care centered on the survivors' family.

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"战争年代与不确定的和平时期"：儿童癌症幸存者父母的叙述。

目标：分析父母对儿童癌症长期和永久存活的意义。方法：定性叙事调查，与儿童癌症存活的青少年和年轻人的父母共同制定。招募和数据收集包括虚拟和面对面两种方式。数据通过半结构化访谈收集。结果：共有十位家长参与了研究。构建了两个主题叙事综合："战争时期 "和 "不确定的和平时期"，以及各自的次主题。癌症诊断标志着父母生活中战争时代的开始。他们经历了癌症治疗的 "高低起伏"，子女的生命受到潜在威胁。之后，"不确定的和平时期 "到来，家庭单元的平衡得以重建。然而，对复发的恐惧使家庭的平静变得不确定，要维持这种平静就需要时刻保持警惕，关注可能发生的新战斗的征兆和症状。结论：研究结果突出了儿童癌症幸存者父母的经历，可用于制定以幸存者家庭为中心的护理模式。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Revista Latino-Americana De Enfermagem NURSING-

自引率

11.10%

发文量

142

期刊介绍： A Revista Latino-Americana de Enfermagem constitui-se no órgão oficial de divulgação científica da Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo e do Centro Colaborador da OMS para o Desenvolvimento da Pesquisa em Enfermagem. Foi criada em abril de 1992 sendo sua primeira edição publicada em janeiro de 1993. No período de 1993 a 1997 tinha periodicidade semestral, de 1997 a 2000 trimestral e, a partir de janeiro de 2001, tem periodicidade bimestral. Caracteriza-se como periódico de circulação internacional, abrangendo predominantemente os países da América Latina e Caribe, embora seja também divulgado para assinantes dos Estados Unidos, Portugal e Espanha.