A biopsychosocial questionnaire for patients with primer Sjögren's syndrome: The BETY-Biopsychosocial Questionnaire.

IF 1.8 4区医学 Q3 RHEUMATOLOGY

Modern Rheumatology Pub Date : 2024-09-03 DOI:10.1093/mr/roae085

Gamze Ahiskali, Orkun Tüfekçi, Nur Banu Karaca, Mustafa Ekici, Nazli Elif Nacar, Sinan Buran, Mine Kantar, Bilgen Apras Şule, Sedat Kiraz, Edibe Unal

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Abstract

Objective: The BETY-Biopsychosocial Questionnaire (BETY-BQ) is a scale developed to assess the biopsychosocial domains of patients with rheumatic diseases under a single roof. The study aimed to determine the validity and reliability of the BETY-BQ in patients with primary Sjögren's Syndrome (pSS).

Methods: At enrollment and one week, 91 patients with pSS completed the BETY-BQ. Construct validity was measured by correlating the BETY-BQ total score responses with the Health Assessment Questionnaire (HAQ), Hospital Anxiety and Depression Scale (HADS), 36-Item Short-Form Health Survey (SF-36), EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI), EULAR Sjögren's Syndrome Disease Activity Index (ESSDAI), Primary Sjögren's Syndrome Quality of Life questionnaire (PSS-QoL), and Euro-QoL 5D (EQ-5D).

Results: The BETY-BQ correlated high to moderate with HAQ, bodily pain subscale of SF-36, Euro Qol-5D, PSS-QoL, HADS, and ESSPRI (0.776 to 0.557, p <0.05). Spearman's correlation coefficients between BETY-BQ total scores at baseline and average one week were very high (rho = 0.98, <0.001) and indicated substantial agreement between test-retest scores (ICC = 0.99, <0.001). Internal consistency reliability at baseline was 0.91 for the BETY-BQ.

Conclusions: BETY-BQ is valid and reliable for assessing biopsychosocial status in patients with pSS and can be used to measure outcomes in pSS.

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针对初级斯约格伦综合征患者的生物心理社会调查问卷：BETY-生物心理社会问卷。

目的：BETY-Biopsychosocial Questionnaire（BETY-BQ）是为评估风湿病患者的生物心理社会领域而开发的量表。本研究旨在确定 BETY-BQ 在原发性斯约格伦综合征（pSS）患者中的有效性和可靠性：方法：91 名原发性 Sjögren 综合征（pSS）患者在入院时和一周后完成了 BETY-BQ。通过将 BETY-BQ 总分与健康评估问卷 (HAQ)、医院焦虑抑郁量表 (HADS)、36 项短表式健康调查 (SF-36) 进行相关性分析，测量其结构有效性、EULAR Sjögren's 综合征患者报告指数 (ESSPRI)、EULAR Sjögren's 综合征疾病活动指数 (ESSDAI)、原发性 Sjögren's 综合征生活质量问卷 (PSS-QoL) 和欧洲生活质量 5D (EQ-5D)。结果显示BETY-BQ与HAQ、SF-36身体疼痛分量表、Euro Qol-5D、PSS-QoL、HADS和ESSPRI具有高度至中度相关性（0.776至0.557，p 结论：BETY-BQ与HAQ、SF-36身体疼痛分量表、Euro Qol-5D、PSS-QoL、HADS和ESSPRI具有高度至中度相关性（0.776至0.557，pBETY-BQ 用于评估 pSS 患者的生物心理社会状况是有效和可靠的，可用于测量 pSS 的预后。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Modern Rheumatology RHEUMATOLOGY-

CiteScore

4.90

自引率

9.10%

发文量

146

审稿时长

1.5 months

期刊介绍： Modern Rheumatology publishes original papers in English on research pertinent to rheumatology and associated areas such as pathology, physiology, clinical immunology, microbiology, biochemistry, experimental animal models, pharmacology, and orthopedic surgery. Occasional reviews of topics which may be of wide interest to the readership will be accepted. In addition, concise papers of special scientific importance that represent definitive and original studies will be considered. Modern Rheumatology is currently indexed in Science Citation Index Expanded (SciSearch), Journal Citation Reports/Science Edition, PubMed/Medline, SCOPUS, EMBASE, Chemical Abstracts Service (CAS), Google Scholar, EBSCO, CSA, Academic OneFile, Current Abstracts, Elsevier Biobase, Gale, Health Reference Center Academic, OCLC, SCImago, Summon by Serial Solutions