Measurement properties of the Portuguese version of the rheumatoid arthritis patient-reported experience measure (CQRA-PREM): a cross-sectional single center study.

IF 1.4 4区 医学 Q3 RHEUMATOLOGY
ARP Rheumatology Pub Date : 2024-04-01
Daniela Oliveira, Raquel Rainho, Miguel Bernardes, Carlos Vaz, Lúcia Costa, João Almeida Fonseca, Cristina Jácome
{"title":"Measurement properties of the Portuguese version of the rheumatoid arthritis patient-reported experience measure (CQRA-PREM): a cross-sectional single center study.","authors":"Daniela Oliveira, Raquel Rainho, Miguel Bernardes, Carlos Vaz, Lúcia Costa, João Almeida Fonseca, Cristina Jácome","doi":"","DOIUrl":null,"url":null,"abstract":"<p><strong>Aims: </strong>to test the measurement properties of the Portuguese version of the Commissioning for Quality in Rheumatoid Arthritis Patient-Reported Experience Measure (CQRA-PREM) for patients with rheumatoid arthritis (RA).</p><p><strong>Methods: </strong>This cross-sectional clinical field study recruited adult patients with RA during rheumatology appointments of a Portuguese rheumatology center. Patients completed the Portuguese version of CQRA-PREM, composed of 7 domains and 24 questions. Sociodemographic characteristics, symptoms/disease duration, current treatment, Pain-Visual Analog Scale (VAS), Patient Global Assessment (PGA)-VAS and Health Assessment Questionnaire (HAQ) were also collected from the patient. Disease Activity Score for 28 joints with C-reactive Protein (DAS28-CRP) was recorded by the rheumatologist. The assessment of CQRA-PREM measurement properties followed the Consensus-based Standards for the Selection of Health Status Measurement Instruments (COSMIN) recommendations.</p><p><strong>Results: </strong>A total of 61 patients with RA were included. The domains in which patients showed better experience were the \"Needs and preferences\", followed by \"Coordination and Communication\". The domain \"Information, education and self-care\" was an identified area of improvement for providing patient-centered care. Ceiling effects were found in four domains of the CQRA-PREM. Internal consistency of all domains was considered good (α>0.7). Homogeneity was considered good for each question in all domains analyzed (0.30≤rp≤0.70). The divergent validity of the PREM was good, revealing that the domains were not correlated (Pain-VAS, HAQ, DAS28-CRP) or only weakly (PGA-VAS) correlated with clinical outcomes.</p><p><strong>Conclusions: </strong>The CQRA-PREM showed acceptable measurement properties and is a useful tool for evaluating quality of healthcare provided in daily practice, as perceived by RA patients in Portugal.</p>","PeriodicalId":29669,"journal":{"name":"ARP Rheumatology","volume":"3 2","pages":"119-127"},"PeriodicalIF":1.4000,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"ARP Rheumatology","FirstCategoryId":"1085","ListUrlMain":"","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"RHEUMATOLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Aims: to test the measurement properties of the Portuguese version of the Commissioning for Quality in Rheumatoid Arthritis Patient-Reported Experience Measure (CQRA-PREM) for patients with rheumatoid arthritis (RA).

Methods: This cross-sectional clinical field study recruited adult patients with RA during rheumatology appointments of a Portuguese rheumatology center. Patients completed the Portuguese version of CQRA-PREM, composed of 7 domains and 24 questions. Sociodemographic characteristics, symptoms/disease duration, current treatment, Pain-Visual Analog Scale (VAS), Patient Global Assessment (PGA)-VAS and Health Assessment Questionnaire (HAQ) were also collected from the patient. Disease Activity Score for 28 joints with C-reactive Protein (DAS28-CRP) was recorded by the rheumatologist. The assessment of CQRA-PREM measurement properties followed the Consensus-based Standards for the Selection of Health Status Measurement Instruments (COSMIN) recommendations.

Results: A total of 61 patients with RA were included. The domains in which patients showed better experience were the "Needs and preferences", followed by "Coordination and Communication". The domain "Information, education and self-care" was an identified area of improvement for providing patient-centered care. Ceiling effects were found in four domains of the CQRA-PREM. Internal consistency of all domains was considered good (α>0.7). Homogeneity was considered good for each question in all domains analyzed (0.30≤rp≤0.70). The divergent validity of the PREM was good, revealing that the domains were not correlated (Pain-VAS, HAQ, DAS28-CRP) or only weakly (PGA-VAS) correlated with clinical outcomes.

Conclusions: The CQRA-PREM showed acceptable measurement properties and is a useful tool for evaluating quality of healthcare provided in daily practice, as perceived by RA patients in Portugal.

葡萄牙语版类风湿关节炎患者报告经验测量法(CQRA-PREM)的测量特性:一项横断面单中心研究。
目的:测试葡萄牙语版类风湿性关节炎(RA)患者质量委托体验测量法(CQRA-PREM)的测量特性:这项横断面临床实地研究招募了在葡萄牙一家风湿病中心就诊的成年类风湿关节炎患者。患者填写了葡萄牙语版的 CQRA-PREM,其中包括 7 个领域和 24 个问题。此外,还收集了患者的社会人口学特征、症状/病程、当前治疗、疼痛-视觉模拟量表(VAS)、患者全面评估(PGA)-VAS 和健康评估问卷(HAQ)。风湿病学家记录了 28 个关节的疾病活动度评分和 C 反应蛋白(DAS28-CRP)。对CQRA-PREM测量特性的评估遵循了基于共识的健康状况测量工具选择标准(COSMIN)的建议:结果:共纳入 61 名 RA 患者。患者体验较好的领域是 "需求和偏好",其次是 "协调和沟通"。信息、教育和自我护理 "领域是以患者为中心的护理服务中需要改进的领域。在 CQRA-PREM 的四个领域发现了上限效应。所有领域的内部一致性良好(α>0.7)。在分析的所有领域中,每个问题的同质性都很好(0.30≤rp≤0.70)。PREM 的发散有效性良好,显示各领域(疼痛-VAS、HAQ、DAS28-CRP)与临床结果无相关性或仅有微弱相关性(PGA-VAS):CQRA-PREM显示了可接受的测量特性,是评估葡萄牙RA患者日常医疗质量的有用工具。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
CiteScore
1.20
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信