Priorities in healthcare provision in Parkinson's disease from the perspective of Parkinson Nurses: A focus group study

IF 3.1 Q1 NURSING
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引用次数: 0

Abstract

Background

Through their expertise and diverse skills, Parkinson Nurses are key care providers for people with Parkinson's disease. They are seen as an important profession for person-centered and multidisciplinary care, considered priorities in Parkinson's care delivery. Currently, however, little is known about the priorities that this profession itself defines for the care of Parkinson's patients and how they perceive their own role in the care process.

Objective

To explore the perspective of Parkinson Nurses on care priorities in people with Parkinson's disease.

Design

Qualitative study.

Setting(s)

The iCare-PD study served as the object of study by establishing an interdisciplinary, person-centered and nurse-led care model in several European countries and Canada. The nurses who participated in this model were part of the study.

Participants

Six Parkinson Nurses participated in the study.

Methods

We conducted a thematic focus group, adopting the paradigm of pragmatism to draft an interview guide. The focus group was based on the inspiration card method and followed recommendations for co-creation processes.

Results

Parkinson Nurses define care priorities for Parkinson's in areas of education, multi-professionalism, and need-orientation. They see themselves as mediators and coordinators of care delivery processes.

Conclusions

In line with international recommendations, Parkinson Nurses prioritize key aspects of multidisciplinary and person-centered care. At the same time, however, the nurses also name care priorities that go beyond the international recommendations. It is therefore crucial to integrate the perspective of this important profession into recommendations for the delivery of healthcare for people with Parkinson's.

Tweetable abstract How do specialized nurses define priorities for person-centered Parkinson's care? Answers are sought in this qualitative study by @MarlenaMunster.

从帕金森病护士的角度看帕金森病医疗服务的优先事项:焦点小组研究
背景帕金森病护士拥有丰富的专业知识和多种技能,是帕金森病患者的主要护理人员。她们被视为以人为本和多学科护理的重要专业人员,被认为是帕金森病护理服务的优先事项。目前,人们对帕金森病患者护理工作的重点以及帕金森病护士如何看待自己在护理过程中所扮演的角色知之甚少。研究对象是 iCare-PD 研究,该研究在多个欧洲国家和加拿大建立了跨学科、以人为本和护士主导的护理模式。参与人员六名帕金森病护士参与了研究。方法我们采用实用主义范式起草了访谈指南,开展了专题焦点小组。结果帕金森护理师在教育、多专业性和需求导向方面确定了帕金森护理的优先事项。结论 根据国际建议,帕金森护士优先考虑多学科和以人为本的护理的关键方面。然而,与此同时,护士们也提出了超出国际建议的护理重点。因此,将这一重要职业的观点纳入为帕金森病患者提供医疗服务的建议中至关重要。@MarlenaMunster 的这项定性研究为我们提供了答案。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
5.80
自引率
0.00%
发文量
45
审稿时长
81 days
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