Ethics of research engagement with Deaf people. A qualitative evidence synthesis.

IF 1.7 3区 教育学 Q2 EDUCATION, SPECIAL
Tomasz Krawczyk, Jan Piasecki, Mateusz Wasylewski, Marcin Waligora
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引用次数: 0

Abstract

In this article, we explore ethical issues of Deaf people's engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers which resulted in 27 eligible papers. We analyzed the data using thematic synthesis and developed 5 analytical themes. The results present research as a struggle for Deaf people and emphasize the need for changes regarding recognition of Deaf research in a cross-cultural context, maintaining equal and partner relations, and provision of accessible communication. Our research contributes to understanding what the ethical inclusion of Deaf people in research implies. It may also support the development of evidence-based normative recommendations and scientific cooperation between Deaf and hearing people.

聋人参与研究的伦理。定性证据综述。
本文探讨了聋人参与研究的伦理问题。为了关注聋人的观点,我们在定性证据综述中调查了现有的定性和混合方法研究。我们的综述基于系统性的数据库搜索(Scopus、PubMed)和对所收录论文的参考文献检查,结果有 27 篇符合条件的论文。我们采用主题综合法对数据进行了分析,并提出了 5 个分析主题。研究结果表明,研究是聋人的奋斗目标,并强调在跨文化背景下承认聋人研究、保持平等和合作伙伴关系以及提供无障碍交流方面需要做出改变。我们的研究有助于理解将聋人纳入研究的伦理意义。它还有助于制定以证据为基础的规范性建议以及聋人和健听人之间的科学合作。
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来源期刊
CiteScore
3.40
自引率
10.00%
发文量
40
期刊介绍: The Journal of Deaf Studies and Deaf Education is a peer-reviewed scholarly journal integrating and coordinating basic and applied research relating to individuals who are deaf, including cultural, developmental, linguistic, and educational topics. JDSDE addresses issues of current and future concern to allied fields, encouraging interdisciplinary discussion. The journal promises a forum that is timely, of high quality, and accessible to researchers, educators, and lay audiences. Instructions for contributors appear at the back of each issue.
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