Key stakeholders' perspectives on the development of an early dietary phosphate self-management strategy for children and young people with chronic kidney disease stages 1–3: A modified Delphi consensus process

IF 2.9 3区医学 Q3 NUTRITION & DIETETICS

Journal of Human Nutrition and Dietetics Pub Date : 2024-05-13 DOI:10.1111/jhn.13308

Pearl Pugh, Pippa Hemingway, Martin Christian, Gina Higginbottom

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引用次数: 0

Abstract

Background

An early dietary phosphate intervention (EPI) can provide vital medical benefits supporting self-management of chronic kidney disease (CKD) in childhood.

Objective

To utilise expert consensus to provide early modelling for an EPI to guide clinical practice across a paediatric renal network.

Methods

Forty-eight statements across six domains were constructed following a systematic review and semi-structured interviews with children and young people (CYP), parents and healthcare professionals (HCP). A three-round online Delphi survey with parents and paediatric renal multi-disciplinary healthcare experts was undertaken.

Results

Twenty-one experts agreed on 56 statements over three Delphi rounds. Statements were accepted in all six domains: definition of an EPI (2), rationale (12), intended users (3), delivery (14) (when [1], where [3], who [2], how [8]), other considerations (16) and potential concerns (9).

Conclusions

Consensus was reached on a definition and a set of guiding principles, providing some early modelling for implementation and future research on the development of an EPI strategy for CYP with CKD.

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主要利益相关者对制定慢性肾病 1-3 期儿童和青少年早期膳食磷酸盐自我管理策略的看法：改良德尔菲共识过程。

背景：早期膳食磷酸盐干预（EPI）可为儿童慢性肾脏病（CKD）的自我管理提供重要的医疗益处：目的：利用专家共识提供早期磷酸盐饮食干预模型，以指导儿科肾病网络的临床实践：在对儿童和青少年 (CYP)、家长和医疗保健专业人员 (HCP) 进行系统回顾和半结构式访谈后，制定了六个领域的 48 项陈述。对家长和儿科肾病多学科医疗专家进行了三轮德尔菲在线调查：结果：21 位专家在三轮德尔菲调查中就 56 项陈述达成了一致意见。所有六个领域的声明均被接受：EPI 的定义 (2)、原理 (12)、目标用户 (3)、交付 (14)（何时 [1]、何地 [3]、何人 [2]、如何 [8]）、其他考虑因素 (16) 和潜在问题 (9)：就定义和一系列指导原则达成了共识，为慢性肾脏病社区青年患者 EPI 战略的实施和未来研究提供了一些早期模型。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Human Nutrition and Dietetics 医学-营养学

CiteScore

5.30

自引率

15.20%

发文量

133

审稿时长

6-12 weeks

期刊介绍： Journal of Human Nutrition and Dietetics is an international peer-reviewed journal publishing papers in applied nutrition and dietetics. Papers are therefore welcomed on: - Clinical nutrition and the practice of therapeutic dietetics - Clinical and professional guidelines - Public health nutrition and nutritional epidemiology - Dietary surveys and dietary assessment methodology - Health promotion and intervention studies and their effectiveness - Obesity, weight control and body composition - Research on psychological determinants of healthy and unhealthy eating behaviour. Focus can for example be on attitudes, brain correlates of food reward processing, social influences, impulsivity, cognitive control, cognitive processes, dieting, psychological treatments. - Appetite, Food intake and nutritional status - Nutrigenomics and molecular nutrition - The journal does not publish animal research The journal is published in an online-only format. No printed issue of this title will be produced but authors will still be able to order offprints of their own articles.