Parent, child, and adolescent lived experience using the insulin-only iLet Bionic Pancreas

IF 2.7 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL

Journal of Pediatric Psychology Pub Date : 2024-04-09 DOI:10.1093/jpepsy/jsae022

Kelsey R Howard, Kimberly P Garza, Marissa Feldman, Jill Weissberg-Benchell

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引用次数: 0

Abstract

Objective Automated insulin delivery (AID) systems show great promise for improving glycemic outcomes and reducing disease burden for youth with type 1 diabetes (T1D). The current study examined youth and parent perspectives after using the insulin-only iLet Bionic Pancreas (BP) during the 13-week pivotal trial. Methods Parents and youth participated in focus group interviews, with questions assessing participants’ experiences in a variety of settings and were grounded in the Unified Theory of Acceptance and Use of Technology. Qualitative analysis was completed by 3 authors using a hybrid thematic analysis approach. Results Qualitative analysis of focus groups revealed a total of 19 sub-themes falling into 5 major themes (Diabetes Burden, Freedom and Flexibility, Daily Routine, Managing Glucose Levels, and User Experience). Participants’ overall experience was positive, with decreased burden and improved freedom and flexibility. Some participants reported challenges in learning to trust the system, adjusting to the user interface, and the system learning their body. Conclusion This study adds to the growing literature on patient perspectives on using AID systems and was among the first to assess caregiver and youth experiences with the BP system over an extended period (13 weeks). Patient feedback on physical experiences with the device and experiences trusting the device to manage glucose should inform future development of technologies as well as approaches to education for patients and their families.

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父母、儿童和青少年使用纯胰岛素 iLet 仿生胰腺的生活体验

目标胰岛素自动给药系统（AID）在改善 1 型糖尿病（T1D）患者的血糖结果和减轻疾病负担方面显示出巨大的前景。本研究考察了在为期 13 周的关键试验中使用纯胰岛素 iLet Bionic Pancreas (BP) 后青少年和家长的观点。方法家长和青少年参加了焦点小组访谈，访谈中的问题评估了参与者在各种环境中的体验，并以 "接受和使用技术统一理论"（Unified Theory of Acceptance and Use of Technology）为基础。三位作者采用混合主题分析法完成了定性分析。结果对焦点小组的定性分析显示，共有 19 个子主题，分为 5 大主题（糖尿病负担、自由和灵活性、日常工作、管理血糖水平和用户体验）。参与者的总体体验是积极的，负担减轻了，自由度和灵活性提高了。一些参与者表示在学习信任系统、适应用户界面以及系统学习他们的身体方面遇到了挑战。结论这项研究为越来越多的关于患者使用辅助呼吸系统的观点的文献增添了新的内容，也是首批评估护理人员和青少年在较长时间（13 周）内使用血压系统的体验的研究之一。患者对使用该设备的身体体验以及信任该设备来管理血糖的体验的反馈意见应为未来的技术开发以及患者及其家属的教育方法提供参考。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

6.00

自引率

11.10%

发文量

期刊介绍： The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.