Navigating late-stage dementia: A perspective from the Alzheimer's Association.

IF 4 Q1 CLINICAL NEUROLOGY
Kristen Clifford, Monica Moreno, Courtney M Kloske
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引用次数: 0

Abstract

Alzheimer's disease (AD) is the most common cause of dementia, a general term for memory loss and decline in other cognitive abilities enough to interfere with daily life. AD accounts for 60% to 80% of dementia cases. The late stage of AD tends to be the shortest stage and, on average, lasts 1 to 2 years. As this stage of the condition progresses, it requires continuous intensive long-term care and around-the-clock intensive care. The Alzheimer's Association stands firm in its commitment to supporting individuals living with AD and other dementia, their care partners, and their health-care providers as they navigate treatment and care decisions across the continuum of the disease. This article is a direct response to recently published works that run counter to the Association's viewpoint. It outlines the Association's perspective on crucial factors for consideration during late-stage dementia care, including advanced directives, palliative care, nutrition, and legal considerations. It explores diverse perspectives from the field, differing from the Alzheimer's Association's stance. Last, it underscores resources available through the Alzheimer's Association, aiming to present a comprehensive perspective on late-stage care for support and assistance to all involved.

驾驭晚期痴呆症:阿尔茨海默氏症协会的观点。
阿尔茨海默病(AD)是痴呆症最常见的病因,是记忆力减退和其他认知能力下降的总称,足以影响日常生活。阿兹海默症占痴呆症病例的 60% 到 80%。注意力缺失症的晚期往往是最短的阶段,平均持续 1 到 2 年。随着病情的发展,这一阶段需要持续的长期强化护理和全天候的重症监护。阿尔茨海默氏症协会坚定地致力于为患有注意力缺失症和其他痴呆症的患者、他们的护理伙伴以及医疗服务提供者提供支持,帮助他们在疾病的整个过程中做出治疗和护理决定。本文是对最近出版的与协会观点相悖的著作的直接回应。文章概述了协会对痴呆症晚期护理过程中需要考虑的关键因素的看法,包括预先指示、姑息治疗、营养和法律考虑因素。它探讨了该领域与阿尔茨海默病协会立场不同的各种观点。最后,它强调了阿尔茨海默氏症协会提供的资源,旨在从全面的角度介绍晚期护理,为所有相关人员提供支持和帮助。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
7.80
自引率
7.50%
发文量
101
审稿时长
8 weeks
期刊介绍: Alzheimer''s & Dementia: Diagnosis, Assessment & Disease Monitoring (DADM) is an open access, peer-reviewed, journal from the Alzheimer''s Association® that will publish new research that reports the discovery, development and validation of instruments, technologies, algorithms, and innovative processes. Papers will cover a range of topics interested in the early and accurate detection of individuals with memory complaints and/or among asymptomatic individuals at elevated risk for various forms of memory disorders. The expectation for published papers will be to translate fundamental knowledge about the neurobiology of the disease into practical reports that describe both the conceptual and methodological aspects of the submitted scientific inquiry. Published topics will explore the development of biomarkers, surrogate markers, and conceptual/methodological challenges. Publication priority will be given to papers that 1) describe putative surrogate markers that accurately track disease progression, 2) biomarkers that fulfill international regulatory requirements, 3) reports from large, well-characterized population-based cohorts that comprise the heterogeneity and diversity of asymptomatic individuals and 4) algorithmic development that considers multi-marker arrays (e.g., integrated-omics, genetics, biofluids, imaging, etc.) and advanced computational analytics and technologies.
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