People first: a participatory community approach on patient-reported outcomes in tuberculosis.

IF 2.3 Q2 RESPIRATORY SYSTEM
Breathe Pub Date : 2024-03-01 Epub Date: 2024-03-12 DOI:10.1183/20734735.0138-2023
Dulce Martín, Pedro Barbosa, João Pedro Ramos, Mariana Vieira, Raquel Duarte
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引用次数: 0

Abstract

Patient-reported outcomes (PROs) play a crucial role in understanding the impact of tuberculosis (TB) on both individuals and communities. Despite advances in TB treatment, conventional outcome definitions often overlook essential components of people with TB's experiences, leading to disparities in treatment understanding. The incorporation of PROs in TB scientific research can help bridge the gap between the health system and people's needs and expectations. PROs can offer valuable insights into non-observable constructs like health literacy, self-efficacy and overall wellbeing, contributing to the comprehensive assessment of diagnosis, treatment and research end-points. Participatory community approaches, such as Community-Based Participatory, emphasise the engagement and involvement of relevant stakeholders in designing interventions tailored to their needs. Key stakeholders, including healthcare professionals, researchers, clinical trial investigators, public health officials, and community health workers, TB survivors and people with TB, can play a vital role in promoting patient-centred care and engaging directly with the TB-affected community. An increased and cross-collaborative effort for the inclusion of PROs in TB research can entail their potential role in developing effective treatment regimens and promoting adherence, while maximising community engagement and improving outcomes for those affected by TB.

以人为本:关于结核病患者报告结果的参与性社区方法。
患者报告结果(PROs)在了解肺结核(TB)对个人和社区的影响方面发挥着至关重要的作用。尽管结核病治疗取得了进步,但传统的结果定义往往忽略了结核病患者经历的重要组成部分,导致对治疗理解的差异。将 PROs 纳入结核病科学研究有助于弥合医疗系统与人们的需求和期望之间的差距。PROs 可以为健康素养、自我效能感和整体健康等不可观测的结构提供有价值的见解,有助于对诊断、治疗和研究终点进行全面评估。参与式社区方法,如基于社区的参与式方法,强调相关利益方的参与和介入,根据他们的需求设计干预措施。主要利益相关者,包括医护专业人员、研究人员、临床试验调查人员、公共卫生官员、社区卫生工作者、结核病幸存者和结核病患者,在促进以患者为中心的护理和直接与受结核病影响的社区接触方面可以发挥至关重要的作用。在结核病研究中纳入 PROs 的更多交叉合作努力,可使 PROs 在制定有效治疗方案和促进坚持治疗方面发挥潜在作用,同时最大限度地提高社区参与度并改善受结核病影响者的治疗效果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Breathe
Breathe RESPIRATORY SYSTEM-
CiteScore
2.90
自引率
5.00%
发文量
51
审稿时长
12 weeks
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