Thematic Analysis of Alzheimer's Medication Management Discussion in a Non-Moderated Online Forum.

IF 2 4区医学 Q2 NURSING

Western Journal of Nursing Research Pub Date : 2024-04-01 Epub Date: 2024-03-08 DOI:10.1177/01939459241237671

Jia Liu, Kylie Meyer, Ashlie Glassner, Mitzi Gonzales, Rebecca J Bartlett Ellis, Hyejin Park, Lixin Song, Neela Patel, Jing Wang

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引用次数: 0

Abstract

Background: Managing medications for Alzheimer's disease and related dementias is challenging for caregivers. Information about caregivers' strategies to manage these challenges is needed to inform intervention development.

Objective: This study aimed to understand caregivers' medication management experiences by analyzing online community discussions.

Methods: Posts were extracted from the ALZConnected^® Forum using keywords "medication" and "drug" via web scraping. The researchers applied thematic analysis.

Results: Four major themes emerged: (1) role transition of medication management responsibilities, (2) caregivers' uncertainty about medication purpose and values, (3) conflicts between the care recipients and caregivers, and (4) difficulty accessing and affording medications.

Conclusions: The experiences shared on a non-moderated, unstructured online forum indicate that medication management is challenging and overwhelming for caregivers of people living with Alzheimer's disease and related dementias. Since this is a progressive disease with various stages and changing needs, caregivers' strategies vary and are often limited by available resources and support. Health care providers should offer training and support for caregivers to navigate the transfer of medication management responsibilities and changing care needs as the disease progresses.

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非主持人在线论坛中阿尔茨海默氏症用药管理讨论的主题分析。

背景：阿尔茨海默病及相关痴呆症的药物管理对护理人员来说是一项挑战。需要了解护理者应对这些挑战的策略，以便为干预措施的制定提供依据：本研究旨在通过分析在线社区讨论来了解护理人员的用药管理经验：通过网络搜索，使用关键词 "用药 "和 "药物 "从 ALZConnected® 论坛中提取帖子。研究人员进行了主题分析：出现了四大主题：(1) 药物管理责任的角色转换，(2) 照顾者对用药目的和价值的不确定性，(3) 照顾者和照顾者之间的冲突，(4) 难以获得和负担药物：在一个非主持人、非结构化的在线论坛上分享的经验表明，对于阿尔茨海默氏症和相关痴呆症患者的护理者来说，药物管理具有挑战性和压倒性。由于阿尔茨海默病是一种渐进性疾病，有不同的阶段和不断变化的需求，因此照顾者的策略各不相同，而且往往受到可用资源和支持的限制。医疗服务提供者应为照护者提供培训和支持，帮助他们在疾病进展过程中顺利完成药物管理责任的转移和不断变化的照护需求。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Western Journal of Nursing Research 医学-护理

CiteScore

4.10

自引率

0.00%

发文量

审稿时长

>12 weeks

期刊介绍： Western Journal of Nursing Research (WJNR) is a widely read and respected peer-reviewed journal published twelve times a year providing an innovative forum for nurse researchers, students, and clinical practitioners to participate in ongoing scholarly dialogue. WJNR publishes research reports, systematic reviews, methodology papers, and invited special papers. This journal is a member of the Committee on Publication Ethics (COPE).