Vietnamese American Perspectives on Engagement in an Aging-Focused Research Registry.

IF 2.2 4区 医学 Q3 CLINICAL NEUROLOGY
Dementia and Geriatric Cognitive Disorders Pub Date : 2024-01-01 Epub Date: 2024-02-29 DOI:10.1159/000538050
Oanh L Meyer, Krystal Nguyen, Bora Nam, Janice Y Tsoh, Ladson Hinton, Dolores Gallagher-Thompson, Joshua Grill, Quyen Vuong, Van Ta Park
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引用次数: 0

Abstract

Introduction: We elicited Vietnamese Americans' perspectives on culturally appropriate recruitment into a new research registry: Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPIs) Research and Education (CARE).

Methods: Three focus groups were conducted with 21 Vietnamese Americans. Topics included knowledge about and experiences with research, outreach and recruitment methods for research participation and registry enrollment, and views about research incentives. Focus group transcripts were analyzed thematically.

Results: Mean age of participants was 41 years (range 18-73), 57% were male, 86% were non-US born, and 81% had never participated in a research study. Themes that emerged included (1) motivations to participate in research to gain knowledge: for oneself, for family's benefit, and for the Vietnamese American community as a whole; (2) necessity of trustworthy and credible individuals/spokespersons to promote the research initiative; (3) recruitment strategies that are age-specific and culturally appropriate, and (4) importance of monetary incentives.

Conclusion: Findings from this study will be used to guide recruitment into and engagement with CARE among Vietnamese Americans but are also relevant for other registries aiming to diversify their participants.

美籍越南人对参与老龄化研究登记的看法。
导言:我们征求了美籍越南人对新的研究注册机构进行文化适宜性招募的看法:美国亚裔、夏威夷原住民和太平洋岛民(AANHPIs)研究与教育合作方法(CARE):与 21 名美籍越南人进行了三次焦点小组讨论。主题包括对研究的了解和经验、参与研究和注册登记的推广和招募方法以及对研究激励措施的看法。对小组讨论记录进行了专题分析:参与者的平均年龄为 41 岁(18-73 岁不等),57% 为男性,86% 非美国出生,81% 从未参与过研究。出现的主题包括:(1) 参与研究以获取知识的动机:为自己、为家人和为整个美籍越南人社区;(2) 需要值得信赖和可信的个人/代言人来推动研究计划;(3) 针对特定年龄和文化的招募策略;(4) 金钱奖励的重要性:本研究的结果将用于指导美籍越南人参与 CARE 的招募工作,同时也适用于其他旨在实现参与者多样化的登记处。
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来源期刊
CiteScore
4.70
自引率
0.00%
发文量
46
审稿时长
2 months
期刊介绍: As a unique forum devoted exclusively to the study of cognitive dysfunction, ''Dementia and Geriatric Cognitive Disorders'' concentrates on Alzheimer’s and Parkinson’s disease, Huntington’s chorea and other neurodegenerative diseases. The journal draws from diverse related research disciplines such as psychogeriatrics, neuropsychology, clinical neurology, morphology, physiology, genetic molecular biology, pathology, biochemistry, immunology, pharmacology and pharmaceutics. Strong emphasis is placed on the publication of research findings from animal studies which are complemented by clinical and therapeutic experience to give an overall appreciation of the field.
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