Patient-reported outcome measures in adult HIV care: A rapid scoping review of targeted outcomes and instruments used

IF 2.8 3区医学 Q2 INFECTIOUS DISEASES

HIV Medicine Pub Date : 2024-01-28 DOI:10.1111/hiv.13599

Kim Engler, Francesco Avallone, Abdul Cadri, Bertrand Lebouché

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引用次数: 0

Abstract

Objective

There is international interest in the integration of patient-reported outcome measures (PROMs) into routine HIV care, but little work has synthesized the content of published initiatives. We conducted a rapid scoping review primarily to identify their selected patient-reported outcomes and respective instruments.

Methods

Four databases were searched on 4 May 2022 (Medline, Embase, CINAHL and PsychINFO) for relevant English language documents published from 2005 onwards. Dual review of at least 20% of records, full texts and data extraction was performed. Outcomes and instruments were classified with an adapted 14-domain taxonomy. Instruments with evidence of validation were described.

Results

Of 13 062 records generated for review, we retained a final sample of 94 documents, referring to 60 distinct initiatives led mostly in the USA (n = 29; 48% of initiatives), Europe (n = 16; 27%) and Africa (n = 9; 15%). The measured patient-reported outcome domains were: mental health (n = 42; 70%), substance use (n = 23; 38%), self-management (n = 16; 27%), symptoms (n = 12; 20%), sexual/reproductive health (n = 12; 20%), physical health (n = 9; 15%), treatment (n= 8; 13%), cognition (n = 7; 12%), quality of life (n = 7; 12%), violence/abuse (n = 6; 10%), stigma (n = 6; 10%), socioeconomic issues (n = 5; 8%), social support (n = 3; 5%) and body/facial appearance (n = 1; 2%). Initiatives measured 2.6 outcome domains, on average (range = 1–11). In total, 62 distinct validated PROMs were identified, with 53 initiatives (88%) employing at least one (M = 2.2). Overwhelmingly, the most used instrument was any version of the Patient Health Questionnaire to measure symptoms of depression, employed by over a third (26; 43%) of initiatives.

Conclusion

Published PROM initiatives in HIV care have spanned 19 countries and disproportionately target mental health and substance use.

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查看原文本刊更多论文

成人 HIV 护理中的患者报告结果测量：对目标结果和所用工具的快速范围审查。

目的：国际上对将患者报告的结果测量（PROMs）纳入常规艾滋病护理很感兴趣，但很少有工作对已发表的倡议内容进行综合。我们进行了一次快速范围综述，主要是为了确定所选的患者报告结果及相关工具：我们于 2022 年 5 月 4 日在四个数据库（Medline、Embase、CINAHL 和 PsychINFO）中检索了 2005 年以来发表的相关英文文献。对至少 20% 的记录、全文和数据提取进行了双重审查。研究结果和研究工具采用经过改编的 14 领域分类法进行分类。结果：在 13 062 份供审查的记录中，我们保留了 94 份文件的最终样本，涉及 60 项不同的倡议，主要由美国（n = 29；占倡议的 48%）、欧洲（n = 16；占 27%）和非洲（n = 9；占 15%）领导。患者报告的测量结果领域包括心理健康（n = 42；70%）、药物使用（n = 23；38%）、自我管理（n = 16；27%）、症状（n = 12；20%）、性健康/生殖健康（n = 12；20%）、身体健康（n = 9；15%）、治疗（n = 8；13%）、认知（n=7；12%）、生活质量（n=7；12%）、暴力/虐待（n=6；10%）、耻辱感（n=6；10%）、社会经济问题（n=5；8%）、社会支持（n=3；5%）和身体/面部外观（n=1；2%）。倡议平均测量了 2.6 个结果域（范围 = 1-11）。总共有 62 个不同的有效 PROM，其中 53 个项目（88%）至少采用了一个（M = 2.2）。绝大多数情况下，使用最多的工具是任何版本的患者健康问卷，用于测量抑郁症状，超过三分之一（26；43%）的项目采用了这一工具：已发布的艾滋病护理中的 PROM 计划横跨 19 个国家，并且不成比例地针对精神健康和药物使用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

HIV Medicine 医学-传染病学

CiteScore

5.10

自引率

10.00%

发文量

167

审稿时长

6-12 weeks

期刊介绍： HIV Medicine aims to provide an alternative outlet for publication of international research papers in the field of HIV Medicine, embracing clinical, pharmocological, epidemiological, ethical, preclinical and in vitro studies. In addition, the journal will commission reviews and other feature articles. It will focus on evidence-based medicine as the mainstay of successful management of HIV and AIDS. The journal is specifically aimed at researchers and clinicians with responsibility for treating HIV seropositive patients.