A COM-B and Theoretical Domains Framework Mapping of the Barriers and Facilitators to Effective Communication and Help-Seeking Among People With, or Seeking a Diagnosis Of, Endometriosis.

IF 4.3 3区 材料科学 Q1 ENGINEERING, ELECTRICAL & ELECTRONIC
ACS Applied Electronic Materials Pub Date : 2024-03-03 Epub Date: 2024-01-23 DOI:10.1080/10810730.2023.2299003
Jasmine Heath Hearn, Katie Bryson, Livija Barsauskaite, Stella Bullo
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Abstract

Endometriosis is a chronic condition in which tissue resembling the endometrium grows outside the womb, causing severe chronic pain. People with endometriosis report difficulty in help-seeking and communicating with healthcare professionals, contributing to diagnosis delays and ineffective management. The present study aimed to identify barriers and facilitators to effective communication using the Theoretical Domains Framework (TDF) and COM-B model to inform behavior change intervention development. This study was a qualitative semi-structured interview and open-ended survey design. Thematic Analysis was utilized to identify barriers and facilitators to effective communication which were mapped to the TDF and COM-B model. Four women aged 25 to 44 with a formal diagnosis of endometriosis participated in interviews. Thirty-three participants, aged 20-48 years, participated in the online survey, 21 of whom had a diagnosis of endometriosis (12 were currently seeking diagnosis). Five COM-B domains were identified: reflective motivation, social and physical opportunity, physical and psychological capability. Ten TDF domains were reflected in concerns surrounding dismissal, disempowerment, social norms, beliefs about consequences, cognitive resources, reinforcement, and environmental context and resources, among others. This is the first study to identify barriers and facilitators of effective communication and help-seeking in light of established behavioral change theory and frameworks for comprehensive intervention design. This provides a comprehensive explanation of challenges in help-seeking for endometriosis and represents the first step in the development of complex interventions to improve help-seeking and communication for people with endometriosis. Interventions targeting salient barriers will have greater potential to change behavior and improve outcomes.

子宫内膜异位症患者或寻求诊断者进行有效沟通和求助的障碍和促进因素的 COM-B 和理论领域框架图。
子宫内膜异位症是一种慢性疾病,患者的子宫内膜组织长在子宫腔外,会引起严重的慢性疼痛。子宫内膜异位症患者在寻求帮助和与医护人员沟通时遇到困难,导致诊断延误和治疗效果不佳。本研究旨在利用理论领域框架(TDF)和 COM-B 模型确定有效沟通的障碍和促进因素,为制定行为改变干预措施提供依据。本研究采用半结构式定性访谈和开放式调查设计。研究采用主题分析法来确定有效沟通的障碍和促进因素,并将其与 TDF 和 COM-B 模型进行映射。四名年龄在 25 至 44 岁之间、被正式诊断患有子宫内膜异位症的妇女参加了访谈。年龄在 20-48 岁之间的 33 名参与者参与了在线调查,其中 21 人已确诊患有子宫内膜异位症(12 人正在寻求诊断)。调查确定了五个 COM-B 领域:反思动机、社交和身体机会、身体和心理能力。十个 TDF 领域反映了围绕解雇、丧失权力、社会规范、对后果的信念、认知资源、强化、环境背景和资源等方面的担忧。这是第一项根据既定的行为改变理论和综合干预设计框架来确定有效沟通和寻求帮助的障碍和促进因素的研究。这全面解释了子宫内膜异位症患者在寻求帮助时所面临的挑战,也是为改善子宫内膜异位症患者的求助和沟通而开发复杂干预措施的第一步。针对突出障碍的干预措施将更有可能改变行为和改善结果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
7.20
自引率
4.30%
发文量
567
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