T. Nazir, Muhammad Umair, Muhammad Mushhood Ur Rehman, Reeda Saeed, Osama O Zaidat, J. Kalia
{"title":"Patient-Reported Outcome Measures (PROMs) in Neurology for Web 3.0 and mHealth: A Conceptual Framework","authors":"T. Nazir, Muhammad Umair, Muhammad Mushhood Ur Rehman, Reeda Saeed, Osama O Zaidat, J. Kalia","doi":"10.21926/obm.neurobiol.2401206","DOIUrl":null,"url":null,"abstract":"According to 2019 WHO data, neurological conditions contribute to 1503.39 disability-adjusted life years (DALYs) per 100,000 population. Approximately 57% of office-based physicians use EHR systems and the natural place to incorporate standardized ePRO is into EHR. However, implementing patient-reported outcomes (PROs) for neurological conditions is challenging because many patients are elderly, have comorbidities, and experience cognitive impairment. As healthcare digitization increases, we propose a framework for easily customizable electronic PROs (ePROMs) in neurology. The framework requires implementation of technological standards, including governance plans, integration, and reporting workflows. It consists of four steps: developing an ePRO questionnaire, making ePRO mobile-compatible and user-friendly, building consensus around ePRO, and validating ePRO. It is important to involve all stakeholders in the ePRO development process and continuously monitor and evaluate progress in real-time to sustain ePRO tools over time.","PeriodicalId":74334,"journal":{"name":"OBM neurobiology","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2024-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"OBM neurobiology","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.21926/obm.neurobiol.2401206","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
According to 2019 WHO data, neurological conditions contribute to 1503.39 disability-adjusted life years (DALYs) per 100,000 population. Approximately 57% of office-based physicians use EHR systems and the natural place to incorporate standardized ePRO is into EHR. However, implementing patient-reported outcomes (PROs) for neurological conditions is challenging because many patients are elderly, have comorbidities, and experience cognitive impairment. As healthcare digitization increases, we propose a framework for easily customizable electronic PROs (ePROMs) in neurology. The framework requires implementation of technological standards, including governance plans, integration, and reporting workflows. It consists of four steps: developing an ePRO questionnaire, making ePRO mobile-compatible and user-friendly, building consensus around ePRO, and validating ePRO. It is important to involve all stakeholders in the ePRO development process and continuously monitor and evaluate progress in real-time to sustain ePRO tools over time.
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