Amplifying Diverse Narratives of Social Support in Online Health Design

Shanna Cameron
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引用次数: 0

Abstract

This article interrogates the competing narratives present in one online community for Asherman syndrome to highlight how certain stories about infertility/parenthood thrive in online discussions while others are suppressed or silenced. The author argues that employing a research stance centered on reproductive justice creates new possibilities for coalition building across differences in community-engaged research design. As reproductive justice frameworks aim to protect all reproductive freedoms, these methods eschew cohesive narratives and instead prioritize amplifying diverse patient voices. The article concludes with patient recommendations for communication design interventions to improve user experience with social support online.
在在线健康设计中放大不同的社会支持叙事
本文探讨了阿什曼综合症在线社区中存在的相互竞争的叙事方式,强调了某些关于不孕不育/为人父母的故事是如何在在线讨论中茁壮成长的,而其他故事则是如何被压制或沉默的。作者认为,采用以生殖正义为中心的研究立场,为在社区参与式研究设计中跨越差异建立联盟创造了新的可能性。由于生殖正义框架旨在保护所有生殖自由,这些方法摒弃了一致的叙述,而是优先考虑放大不同患者的声音。文章最后提出了患者对交流设计干预的建议,以改善用户对在线社会支持的体验。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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