The experiences of parents who have a son or daughter with an intellectual disability: A systematic review of Interpretative Phenomenological Analysis (IPA) papers

Abstract

This study aims to systematically identify and synthesise research that uses Interpretative Phenomenological Analysis (IPA), to investigate the experiences of parents with sons and daughters with intellectual disabilities. 25 studies were identified as eligible and classified into three categories: health-related, parent role and identity, and lifespan-related. The main themes that emerged were the challenges of parenting sons and daughters with intellectual disabilities; support from others; parent coping and self-care; and knowledge, certainty and control. Future research is needed from a variety of countries, cultures and a focus on fathers and older parents. Professionals should address parents’ psychological needs, provide practical and systemic support, and combat social stigma surrounding intellectual disabilities. This study is the first systematic review of IPA research on this topic.