Whither Health Research

Dimitri Patrinos, Robyn McDougall, M. Beauvais, B. Knoppers
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Abstract

Under Article 24 of the Convention on the Rights of the Child (crc), children have the right to the highest attainable standard of health. One component of this right that has received little attention is the connection between children’s health and their participation in health-related research. This represents a missed opportunity in the full realisation of the right to health. This paper accordingly argues that Article 24 should obligate or incentivise State Parties to create more research opportunities for children in implementing this right. It explores the links between paediatric research and children’s health, highlighting the impacts of the lack of research on the paucity or absence of many treatment and prevention options for childhood diseases. It also considers the application of other rights which may be implicated in paediatric research. While paediatric health-related research is imperative, it must occur within a framework which respects all children’s rights.
健康研究何去何从
根据《儿童权利公约》(CRC)第 24 条,儿童有权享有能达到的最高标准的健康。这项权利的一个组成部分很少受到关注,那就是儿童健康与他们参与健康相关研究之间的联系。这是在充分实现健康权方面错失的一个机会。因此,本文认为,第 24 条应要求或激励缔约国在落实这项权利时为儿童创造更多的研究机会。本文探讨了儿科研究与儿童健康之间的联系,强调了缺乏研究对儿童疾病治疗和预防方案的匮乏或缺失的影响。报告还考虑了可能与儿科研究有关的其他权利的适用问题。虽然与儿科健康有关的研究势在必行,但必须在尊重所有儿童权利的框架内进行。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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