Mothers' experiences of caring for their children with liver transplantation: From sorrow to new determination.

IF 1.3 4区 医学 Q3 NURSING
Sooyoung Kim, Sook Jung Kang
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引用次数: 0

Abstract

This study aims to understand mothers' dynamic experiences of caring for their children with liver transplant. A descriptive phenomenological qualitative approach was applied to this study. A total of seven mothers participated in this study. Data were collected from April 2020 to June 2020 through face-to-face interviews. Data analysis was performed using Giorgi's phenomenological method. By grouping general meaning units, 8 themes and 19 subthemes were derived. Eight themes are as follows: sorrow and distress of accepting a child's diagnosis; difficulties in deciding to undergo liver transplantation; negative emotions before and after transplant; the support system before and after liver transplantation; achieving a sense of trust toward healthcare providers; new concerns about the child's life after undergoing liver transplantation; appreciation of the experience; and new determination and expectations for future life. This study can contribute to the guideline that describes the role and daily life experiences of caregiving for other parents whose children undergo liver transplantation and nurses who work with impacted families. Healthcare providers can refer to the results to provide liver transplantation childcare and hospital-based support groups for child's family to improve nurses' communication skills.

母亲照顾肝移植子女的经历:从悲伤到新的决心
本研究旨在了解母亲照顾肝移植子女的动态经历。本研究采用了描述性现象学定性方法。共有七位母亲参与了本研究。数据收集时间为 2020 年 4 月至 2020 年 6 月,采用面对面访谈的方式。数据分析采用乔吉现象学方法。通过对一般意义单元进行分组,得出了 8 个主题和 19 个次主题。八个主题分别是:接受儿童诊断的悲伤和痛苦;决定接受肝移植的困难;移植前后的负面情绪;肝移植前后的支持系统;对医疗服务提供者产生信任感;对儿童接受肝移植后的生活产生新的担忧;对这一经历的感激;以及对未来生活的新决心和期望。这项研究有助于为其他接受肝脏移植手术的患儿父母以及为受影响家庭提供服务的护士提供指导,说明护理的作用和日常生活经验。医护人员可参考研究结果,为肝移植患儿提供护理服务,并为患儿家属提供医院支持小组,以提高护士的沟通技巧。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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