Challenged thriving: a qualitative study of resilience in multiple sclerosis family carers during the COVID-19 pandemic

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2023-12-07 DOI:10.1332/23978821y2023d000000015

Odessa McKenna, Afolasade Fakolade, Katherine Cardwell, Lara A Pilutti

引用次数: 0

Abstract

This study investigates the lived experiences of multiple sclerosis family carers during the COVID-19 pandemic and explores the impact of the pandemic on psychological resilience processes using a socioecological framework. Following thematic analysis of interviews, two main findings emerged: first, behavioural vigilance intended to mitigate viral spread eclipsed carers’ needs and deprived them of support resources; and, second, multiple sclerosis carers harboured resilience via practices of gratitude and leveraging interpersonal relationships. Future action is needed to develop public crisis responses that integrate multiple sclerosis carers’ needs, including improved care-continuity models, the alleviation of social isolation and advancements in multifaceted wellness preservation.

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面对挑战，茁壮成长：关于多发性硬化症家庭照顾者在 COVID-19 大流行期间的恢复能力的定性研究

本研究调查了COVID-19大流行期间多发性硬化症家庭照顾者的生活经历，并利用社会生态学框架探讨了大流行对心理恢复过程的影响。在访谈的主题分析之后，出现了两个主要发现:首先，旨在减轻病毒传播的行为警惕掩盖了护理人员的需求，剥夺了他们的支持资源;其次，多发性硬化症护理人员通过感恩和利用人际关系的实践来保持韧性。未来需要采取行动，制定公共危机应对措施，整合多发性硬化症护理人员的需求，包括改进护理连续性模式，减轻社会孤立，以及在多方面的健康保护方面取得进展。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.