Prioritizing the efforts: lived experiences of family when taking care of people with cancer

Q4 Nursing
Titan Ligita, Merry Andriani, Hazwani Hazwani, Ersy Aprilya Fransiska, Shafira Aulya
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Abstract

Abstract Objective Cancer has one of the highest disease mortality rates. Families are very important in the treatment of people with cancer. By using a phenomenological design, this study aimed to explore the experience of families in caring for a person with cancer and to identify the needs of these families. Methods First, eight interviews were undertaken with family members selected through a purposive sampling method. Then, another three interviews were conducted for data validation. The collected data were analyzed using the framework method of analysis. Results The core theme, “Prioritizing the efforts: Being aware of the best we could do for our family,” reflected family’s experiences of caring for a person with cancer and was underpinned by five themes: “Decisions to make,” “Keeping up the good support,” “Acknowledging the others’ contributions,” “Assisting my family to alleviate the disease,” and “Adapting to the current situation.” Conclusions The results suggest that building mutual trust and communication between family and healthcare professionals is vital in decision-making for people with cancer. Family may also work with the person in fulfilling their needs, without disregarding the needs of the family. When supporting the needs of people with diabetes, the family requires appropriate information, and thus, healthcare professionals wisely select which information can help the family make a decision regarding the treatment. After administering the treatment and providing information for people with cancer and their family, asking for feedback is required for evaluation.
工作的优先次序:家庭在照顾癌症患者时的生活经历†
摘要目的癌症是死亡率最高的疾病之一。家庭在癌症患者的治疗中非常重要。通过现象学设计,本研究旨在探讨家庭在照顾癌症患者方面的经验,并确定这些家庭的需求。方法首先,采用有目的抽样法对8名家庭成员进行访谈。然后,进行另外三次访谈进行数据验证。采用框架分析法对收集到的数据进行分析。结果核心主题“优先努力:意识到我们能为家庭做的最好”反映了家庭照顾癌症患者的经历,并以五个主题为基础:“做出决定”、“保持良好的支持”、“承认他人的贡献”、“帮助我的家人减轻疾病”和“适应现状”。结论建立家庭与医护人员之间的相互信任和沟通对癌症患者的决策至关重要。家庭也可以在不忽视家庭需要的情况下,与患者一起满足他们的需要。当支持糖尿病患者的需求时,家庭需要适当的信息,因此,医疗保健专业人员明智地选择哪些信息可以帮助家庭做出有关治疗的决定。在实施治疗并为癌症患者及其家属提供信息后,需要征求反馈以进行评估。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Frontiers of Nursing
Frontiers of Nursing Nursing-Nursing (all)
CiteScore
0.70
自引率
0.00%
发文量
38
审稿时长
16 weeks
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