Perception towards newborn screening

S. Amalakanti, Kesava Venkata Raman Arepalli, T. Suvvari, J. Jillella
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Abstract

Background: Newborn screening (NBS) to identify various disorders has been running successfully across the world. But the public in many developing countries do not have access to this program. Aims: To assess the awareness of NBS in patients and clinicians. Patients and Methods: We assessed the awareness of NBS by oral questionnaire. Results: We found that, in the community the awareness regarding NBS was low [47.2%] and the knowledge of the availability of the test was less both in the community [65%] and amongst clinicians [11/28]. But all the subjects opined that the tests will have a high rate of acceptance if they are offered free of cost. Conclusions: The awareness regarding NBS is low but has potential for acceptance.
对新生儿筛查的认识
背景:新生儿筛查(NBS)识别各种疾病已经在世界范围内成功运行。但是,许多发展中国家的公众没有机会参加这个项目。目的:评估患者和临床医生对NBS的认识。患者和方法:采用口头问卷调查的方式评估患者对NBS的认知。结果:我们发现,在社区中,对NBS的认知度很低[47.2%],社区[65%]和临床医生[11/28]对该测试的可用性的了解都较少。但所有的受试者都认为,如果测试是免费的,接受率会很高。结论:NBS的认知度较低,但有接受的潜力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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