Healthcare and Rehabilitation Needs of Individuals with Multiple Sclerosis

Contemporary Research in Disability and Rehabilitation Pub Date : 2018-12-14 DOI:10.51734/crdr.v1i1.29

B. Kinyanjui, Bradley McDaniels, Michael P. Frain, M. Bishop, C. Chiu, Beatrice Lee, L. Tiro

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引用次数: 3

Abstract

There is little research delineating the healthcare and rehabilitation needs of individuals with multiple sclerosis (MS) that is based on the perspectives of those individuals themselves. The medical community is largely well-informed about disease progression, symptoms, and treatment of MS, but little is known regarding the barriers and unmet needs that individuals with MS experience in their interaction with healthcare and rehabilitation systems and providers, and in their efforts to maintain healthy, productive, and participatory lives. In this article, we provide a comprehensive summary of the most frequently identified healthcare and rehabilitation needs of individuals with MS based on a review of over 500 articles, from which 29 articles were selected for inclusion as they specifically addressed the needs or unmet healthcare and rehabilitation needs of people with MS. Based on our review, we identified 11 categories of needs, which we discuss in the context of three broad categories, including (a) emotional and psychological support, (b) healthcare and rehabilitation, and (c) transportation, home care, and financial needs. Keywords: multiple sclerosis, health care, priorities, needs, expectations

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多发性硬化症患者的保健和康复需求

很少有研究描述多发性硬化症(MS)患者的医疗保健和康复需求是基于这些个体自己的观点。医学界对多发性硬化症的疾病进展、症状和治疗了解甚多，但对多发性硬化症患者在与医疗保健和康复系统及提供者的互动中遇到的障碍和未满足的需求知之甚少，他们努力维持健康、富有成效和参与性的生活。在本文中，我们基于对500多篇文章的回顾，全面总结了多发性硬化症患者最常见的医疗保健和康复需求，其中29篇文章被选中纳入，因为它们专门解决了多发性硬化症患者的需求或未满足的医疗保健和康复需求。根据我们的回顾，我们确定了11类需求，我们在三个大类的背景下讨论这些需求。包括(a)情感和心理支持，(b)保健和康复，以及(c)交通、家庭护理和经济需求。关键词:多发性硬化症，医疗保健，重点，需求，期望

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Contemporary Research in Disability and Rehabilitation

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